Survived so what? Identifying priorities for research with children and families post-paediatric intensive care unit

Nursing in Critical Care
Joseph C ManningSarah A Redsell

Abstract

The involvement of patients and the public in the development, implementation and evaluation of health care services and research is recognized to have tangible benefits in relation to effectiveness and credibility. However, despite >96% of children and young people surviving critical illness or injury, there is a paucity of published reports demonstrating their contribution to informing the priorities for aftercare services and outcomes research. We aimed to identify the service and research priorities for Paediatric Intensive Care Unit survivors with children and young people, their families and other stakeholders. We conducted a face-to-face, multiple-stakeholder consultation event, held in the Midlands (UK), to provide opportunities for experiences, views and priorities to be elicited. Data were gathered using write/draw and tell and focus group approaches. An inductive content analytical approach was used to categorize and conceptualize feedback. A total of 26 individuals attended the consultation exercise, including children and young people who were critical care survivors; their siblings; parents and carers; health professionals; academics; commissioners; and service managers. Consultation findings indicated that future...Continue Reading

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Oct 24, 2013·Nursing in Critical Care·Joseph C ManningSarah A Redsell
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Citations

Feb 6, 2019·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Rachel Anne PulhamPadmanabhan Ramnarayan
Apr 24, 2020·Nursing in Critical Care·Joseph C ManningJos M Latour
Jan 4, 2020·Pediatric Critical Care Medicine : a Journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies·Ericka L Fink, Karen Choong
Jun 10, 2020·British Journal of Nursing : BJN·Sarah BrandAlison Musgrove
Jun 12, 2020·The Canadian Journal of Nursing Research = Revue Canadienne De Recherche En Sciences Infirmières·Janet YamadaSouraya Sidani
May 29, 2018·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Mandie Foster, Lisa Whitehead
Jan 12, 2019·Comprehensive Child and Adolescent Nursing·Mandie Foster, Linda Shields
Mar 1, 2018·Nursing in Critical Care·Julie Scholes, Josef Trapani
Aug 14, 2021·Respirology : Official Journal of the Asian Pacific Society of Respirology·Jasneek ChawlaAndrew Tai

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