Survivorship care experiences, information, and support needs of patients with oral and oropharyngeal cancer

Head & Neck
Sharon ManneEvelyne Kalyoussef

Abstract

There is little research documenting the posttreatment experiences and needs of oral/oropharyngeal cancer survivors. In this cross-sectional study, 92 patients with oral/oropharyngeal cancer diagnosed between 2 and 5 years prior completed a survey about oral cancer information and support needs. About half retrospectively reported that they did not receive a written treatment summary. The desire for more oral cancer information was common; one-third or more desired more information about long-term effects, recommended follow-up, and symptoms that should prompt contacting a doctor. Support needs were less common; only a lack of energy was rated as a significant support need. Patients who had a recurrence, did not drink alcohol, and had a greater recurrence fear desired more information. Smokers and more distressed patients reported more support needs. Survivors reported the desire for more oral cancer information. A desire for assistance was less common. © 2016 Wiley Periodicals, Inc. Head Neck 38: E1935-E1946, 2016.

References

Sep 7, 2000·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·K BjordalS Kaasa
Feb 17, 2001·Psycho-oncology·J ZaboraS Piantadosi
Jan 24, 2002·Oral Surgery, Oral Medicine, Oral Pathology, Oral Radiology, and Endodontics·Joseph A ToljanicJean-Francois Bedard
Feb 13, 2003·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·Suzanne M Johnson Vickberg
Apr 21, 2006·The British Journal of Oral & Maxillofacial Surgery·D KissunS N Rogers
May 16, 2006·International Journal of Oral and Maxillofacial Surgery·J M RiegerJ F Wolfaardt
Sep 2, 2006·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Michelle L MacveanRobert Sanson-Fisher
Nov 10, 2006·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Kevin C Oeffinger, Mary S McCabe
Mar 21, 2007·European Journal of Cancer Care·B Erci, N Karabulut
Jul 20, 2007·Breast Cancer Research and Treatment·Jean YoonKatherine L Kahn
Aug 2, 2007·The American Journal of Nursing·Eric Miller
May 20, 2008·Lancet·Athanassios ArgirisRobert L Ferris
May 29, 2008·British Journal of Cancer·E ReamA Richardson
Jul 5, 2008·Journal of Advanced Nursing·Cherith Jane SempleKate Sullivan
Sep 19, 2008·Cancer·David M CognettiStephen Y Lai
Jan 14, 2009·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Jun J MaoKatrina Armstrong
Jan 28, 2009·British Journal of Health Psychology·Stephen L Ristvedt, Kathryn M Trinkaus
Mar 26, 2009·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·James D HarrisonMichael J Solomon
Apr 1, 2009·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Winson Y CheungCraig C Earle
Jun 16, 2009·Journal of Evaluation in Clinical Practice·Allison BoyesChristophe Lecathelinais
Jul 15, 2009·Psycho-oncology·M E McDowellS K Chambers
Jul 29, 2009·Seminars in Oncology Nursing·Margaret EadesRavi Bhargava
Dec 1, 2009·European Journal of Obstetrics, Gynecology, and Reproductive Biology·Friederike SiedentopfAndreas Dinkel
May 11, 2011·European Journal of Oncology Nursing : the Official Journal of European Oncology Nursing Society·V MorrisonS Gollins
Jun 22, 2011·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Mikaela L JorgensenMichael J Solomon
Sep 3, 2011·Journal of Psychosocial Oncology·Olivia A UrbaniecHayley S Whitford
Nov 1, 2011·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Anna UgaldePenelope Schofield
Nov 17, 2011·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Nicole K KissJune Corry
Dec 14, 2011·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Erica L MayerCraig C Earle
Mar 15, 2012·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Lise Vilstrup HolmJens Søndergaard
Apr 6, 2012·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·M T E PutsA E Tourangeau
Apr 25, 2012·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Anna MerportMarianne N Prout
Jul 17, 2012·Otolaryngologic Clinics of North America·Donna C Tippett, Kimberly T Webster
Aug 14, 2012·Journal of Cancer Epidemiology·Keith M BellizziGretchen Keel
Sep 12, 2012·Annals of Family Medicine·Shawna V HudsonRobert S Dipaola
Jan 25, 2013·Journal of breast cancer·Byeong-Woo Park, Sook Yeon Hwang
Oct 8, 2013·Journal of the National Cancer Institute·Laura P ForsytheJulia H Rowland

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Citations

Jan 11, 2020·Head & Neck·David M CognettiKelly M Malloy
Feb 6, 2017·Journal of Cancer Education : the Official Journal of the American Association for Cancer Education·Janet PapadakosJolie Ringash
Dec 15, 2016·Pilot and Feasibility Studies·Talya SalzShrujal S Baxi
Aug 20, 2021·European Journal of Cancer Care·Eline de HeusSaskia F A Duijts

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