Systems Integration: The Next Frontier in Newborn-Screening Timeliness.

Journal of Public Health Management and Practice : JPHMP
Norma-Jean SimonBeth A Tarini

Abstract

In 2015, the United States Federal Advisory Committee on Heritable Disorders in Newborns and Children issued recommendations for state-based newborn screening programs to benchmark improvements in newborn-screening timeliness. Newborn screening (NBS) timeliness encompasses the efficient collection, transportation, testing, and reporting of results. Nearly all state programs fail to achieve recommended timeliness benchmarks. Our study explored the processes and procedures that accelerate or hamper progress toward improving NBS timeliness from a public health laboratory program perspective. We conducted semistructured interviews to elicit public health laboratory perspectives on NBS specimen delivery, laboratory testing and processing, communication of results to birthing providers, program staffing, and quality measures and data sharing. A content analysis explored practices, processes, and procedures related to NBS timeliness. A secondary analysis examined interorganizational strategies to enhance timeliness outcomes among NBS stakeholders. Ten laboratories participated in the study (n = 21 personnel). Participants included public health laboratory directors, NBS program managers, and NBS follow-up program staff. Efforts to imp...Continue Reading

References

Jun 1, 2006·Pediatrics·UNKNOWN American College of Medical Genetics Newborn Screening Expert Group
Feb 15, 2017·JAMA : the Journal of the American Medical Association·Jeff Lyon

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