Tackling Ambulatory Safety Risks Through Patient Engagement: What 10,000 Patients and Families Say About Safety-Related Knowledge, Behaviors, and Attitudes After Reading Visit Notes.

Journal of Patient Safety
Sigall K BellFabienne Bourgeois

Abstract

Ambulatory safety risks including delayed diagnoses or missed abnormal test results are difficult for clinicians to see, because they often occur in the space between visits. Experts advocate greater patient engagement to improve safety, but strategies are limited. Patient access to clinical notes ("OpenNotes") may help close the safety gap between visits. We surveyed patients and families who logged on to the patient portal and had at least one ambulatory note available in the past 12 months at two academic hospitals during June to September 2016, focusing on patient-reported effects of OpenNotes on safety knowledge, behaviors, and attitudes. A total of 6913 (28%) of 24,722 patients at an adult hospital and 3672 (17%) of 21,579 participants at the children's hospital submitted surveys. Approximately 75% of patients and parents each reported that reading notes helped them understand the reason for both tests and referrals, and approximately 50% felt that it helped them complete tests and referrals. Roughly 75% of participants were more likely to check and understand test results. Overall, 97% of participants reported that trust in the provider, activation, patient-provider goal alignment, and teamwork were each better or the sa...Continue Reading

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Citations

Jan 30, 2020·JAMA Dermatology·Daniel Miller
Feb 12, 2020·Journal of Medical Internet Research·Savannah Ir van KuppenveldJohannes Jm van Delden
Mar 20, 2020·BMJ Quality & Safety·Charlotte BleaseCatherine DesRoches
Sep 11, 2019·Journal of the American Medical Informatics Association : JAMIA·Fabienne C BourgeoisSigall K Bell
Mar 29, 2020·JAMA Network Open·Catherine M DesRochesJan Walker
May 9, 2019·Journal of Medical Internet Research·Jan WalkerTom Delbanco
Jun 13, 2019·Obstetrics and Gynecology·Mary HerlihySigall K Bell
Dec 29, 2020·Journal of the American Medical Informatics Association : JAMIA·Barbara D LamSigall K Bell
Apr 23, 2021·Journal of General Internal Medicine·James D RalstonEllen M Schartz
May 16, 2021·Journal of Medical Ethics·Charlotte BleaseCatherine M DesRoches
Jun 4, 2021·JMIR Mental Health·Charlotte BleaseCatherine DesRoches
Nov 9, 2021·Journal of Medical Internet Research·Jan WalkerTom Delbanco

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Software Mentioned

OpenNotes
SurveyGizmo

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