Taking active steps: Changes made by partners of people with multiple sclerosis who undertake lifestyle modification

PloS One
Sandra L NeateTracey J Weiland

Abstract

Multiple sclerosis (MS), a demyelinating condition of the central nervous system with an unpredictable course, has a major impact on the lives of people with MS. Partners of people with MS may be significantly affected by the diagnosis, management and uncertainty around disease progression and may provide substantial support and care. Modification of lifestyle risk factors in conjunction with standard medical management has been associated with improved physical and mental quality of life. Adopting major lifestyle modification may have a multi-faceted impact on the person with MS and their partner. Experiences of partners of people with MS have been previously explored, but the experiences of partners of people with MS who adopt this strategy have not. As part of a larger study that aimed to explore partners' lived experiences of and attitudes towards MS and lifestyle modification, this study reports the active steps and significant changes partners undertook to assist the person with MS and, at times, to also modify their own lives. Within an interpretive framework, using Heidegger's phenomenological philosophy, a qualitative study of semi-structured interviews was conducted. Aged greater than 18 years and in a spousal relatio...Continue Reading

References

Jun 23, 2000·Disability and Rehabilitation·E A HakimD L McLellan
Oct 17, 2003·Journal of Personality and Social Psychology·Robert J VallerandJosee Marsolais
May 26, 2004·Public Health Reports·Halsted Holman, Kate Lorig
Aug 18, 2004·Journal of Advanced Nursing·Jenny Cheung, Peta Hocking
Dec 9, 2004·Multiple Sclerosis : Clinical and Laboratory Research·Christoph HeesenIngrid Mühlhauser
Jan 24, 2007·Journal of Neurology, Neurosurgery, and Psychiatry·Nanna FigvedDag Aarsland
Mar 17, 2007·Psychology, Health & Medicine·Kenneth I Pakenham
Apr 19, 2007·Multiple Sclerosis : Clinical and Laboratory Research·T E ShermanR P Lisak
Sep 18, 2007·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Allison TongJonathan Craig
Mar 12, 2008·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Marijean Buhse
Jan 27, 2009·Multiple Sclerosis : Clinical and Laboratory Research·A BogosianL Dennison
Oct 12, 2011·Journal of Clinical Psychology in Medical Settings·Katie AckroydClaire L Isaac
Jan 12, 2012·European Journal of Neurology : the Official Journal of the European Federation of Neurological Societies·A GiordanoUNKNOWN POSMOS study
Mar 1, 2012·Expert Review of Neurotherapeutics·Izabella LejbkowiczAriel Miller
Mar 1, 2012·Neurological Sciences : Official Journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology·Emily J HadgkissIan Gawler
Jul 1, 2011·International Journal of MS Care·Robert J BuchananChunfeng Huang
Feb 2, 2015·Neurological Sciences : Official Journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology·Emily J HadgkissTracey J Weiland
Dec 15, 2015·International Journal of MS Care·Tamara McKenzieJames Simsarian
Oct 1, 2014·Current Directions in Psychological Science·Angela Duckworth, James J Gross
Dec 8, 2017·Neurology·Kathryn C FitzgeraldRuth Ann Marrie
Jun 26, 2018·Quality & Quantity·Benjamin SaundersClare Jinks

❮ Previous
Next ❯

Citations

May 24, 2020·Current Neurology and Neuroscience Reports·Rebecca Maguire, Phil Maguire
Oct 3, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Sandra L NeateNupur Nag

❮ Previous
Next ❯

Software Mentioned

Skype
UK Headspace
OMS
SurveyMonkey
Excel

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.