PMID: 9427428Jan 14, 1998Paper

The accuracy and completeness of childhood cancer registration in New Zealand

Cancer Causes & Control : CCC
J D DockertyS M Williams

Abstract

The New Zealand Cancer Registry (NZCR) is the main source of data on cancer incidence in New Zealand. The accuracy and completeness of registration of childhood cancers (ages zero to 14 years) were assessed during the conduct of a case-control study. Newly diagnosed children (1990-93) were ascertained from three sources: the NZCR; the Patient Management System (hospital admissions and discharges); and the separate Children's Cancer Registry. Pathology reviews were conducted to verify the diagnoses. Capture-recapture methods were used to assess the completeness of ascertainment. During the four-year period, 409 incident cases of childhood cancer were confirmed, giving an age-standardized incidence rate of 131 per million person-years (95 percent confidence interval = 119-144). The NZCR ascertained 395 (97 percent) of these children. In addition, the NZCR notified us of 43 other 'childhood cancer' registrations which were not confirmed as new cases of childhood cancer according to our eligibility criteria. The main reasons for these were coding errors (20 registrations), duplicates (seven), and a change in the pathological diagnosis as a result of the pathology review (seven). The capture-recapture estimate of the total number of...Continue Reading

Citations

Nov 9, 2000·Medical and Pediatric Oncology·J D DockertyD C Skegg
Nov 17, 2001·European Journal of Cancer Prevention : the Official Journal of the European Cancer Prevention Organisation (ECP)·E CrocettiM Zappa
May 21, 2020·Journal of the National Cancer Institute·Marion PiñerosEva Steliarova-Foucher
Nov 9, 2004·Statistics in Medicine·Xiaoyin WangDongchu Sun
Mar 9, 2006·European Journal of Cancer Prevention : the Official Journal of the European Cancer Prevention Organisation (ECP)·Andreas StangKarl-Heinz Jöckel
Jul 9, 1999·Journal of Epidemiology and Community Health·J D DockertyB Borman
Feb 24, 2007·Journal of Paediatrics and Child Health·Nicholas M Douglas, John D Dockerty
Jun 13, 2017·European Journal of Cancer Prevention : the Official Journal of the European Cancer Prevention Organisation (ECP)·Keiu PaapsiKaire Innos

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