The care.data consensus? A qualitative analysis of opinions expressed on Twitter

BMC Public Health
Rebecca Hays, Gavin Daker-White

Abstract

Large, integrated datasets can be used to improve the identification and management of health conditions. However, big data initiatives are controversial because of risks to privacy. In 2014, NHS England launched a public awareness campaign about the care.data project, whereby data from patients' medical records would be regularly uploaded to a central database. Details of the project sparked intense debate across a number of platforms, including social media sites such as Twitter. Twitter is increasingly being used to educate and inform patients and care providers, and as a source of data for health services research. The aim of the study was to identify and describe the range of opinions expressed about care.data on Twitter for the period during which a delay to this project was announced, and provide insight into the strengths and flaws of the project. Tweets with the hashtag #caredata were collected using the NCapture tool for NVivo. Methods of qualitative data analysis were used to identify emerging themes. Tweets were coded and analysed in-depth within and across themes. The dataset consisted of 9895 tweets, captured over 18 days during February and March 2014. Retweets (6118, 62%) and spam (240, 2%) were excluded. The re...Continue Reading

References

Sep 1, 2004·Annals of Family Medicine·Anton J KuzelRichard M Frankel
Mar 16, 2013·Health Policy·Dominic KingAra Darzi
Jun 26, 2013·Journal of General Internal Medicine·Nitesh V Chawla, Darcy A Davis
Jul 25, 2013·Healthcare Informatics Research·Kyoungyoung Jee, Gang-Hoon Kim
Dec 21, 2013·Journal of Public Health Management and Practice : JPHMP·Catherine Bartlett, Rebecca Wurtz
Apr 22, 2014·BMJ Quality & Safety·Felix GreavesChristopher Millett

❮ Previous
Next ❯

Citations

Jan 23, 2016·International Journal of Environmental Research and Public Health·Marco PalominoSara Warber
Oct 18, 2015·International Journal of Hygiene and Environmental Health·Torka PoetSean M Hays
Nov 26, 2016·Journal of Medical Ethics·Paraskevas Vezyridis, Stephen Timmons
Feb 3, 2018·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Stuart McLennanHolger Langhof
Apr 25, 2018·The British Journal of General Practice : the Journal of the Royal College of General Practitioners·Rebecca ElveyDamian Hodgson
Jul 1, 2018·BMJ Evidence-based Medicine·Amitava BanerjeeAndrew R J Mitchell
Aug 20, 2019·Sociology of Health & Illness·Paraskevas Vezyridis, Stephen Timmons
Apr 22, 2020·Learning Health Systems·Annabelle CumynJean-François Ethier
Sep 10, 2020·International Journal of Environmental Research and Public Health·Éidín Ní ShéDiarmuid Stokes
Jul 9, 2020·Genomics & Informatics·Atsuko Yamaguchi, Núria Queralt-Rosinach
Dec 24, 2018·Frontiers in Medicine·Suzan DijkstraRemi Stevelink
Oct 31, 2020·Biopreservation and Biobanking·Felix GilleAlessandro Blasimme
Jul 27, 2021·Life Sciences, Society and Policy·Felix Gille, Caroline Brall

❮ Previous
Next ❯

Software Mentioned

CareData
NCapture Internet Explorer
Tweepy
NCapture
NVivo
Spark Streaming

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.