The Caregiver's Role Across the Bone Marrow Transplantation Trajectory

Cancer Nursing
Diane Von AhBetsy Fife

Abstract

Approximately 50 000 people undergo bone marrow transplants (BMTs) each year worldwide. With the move to more outpatient and home care, family caregivers are playing an ever-increasing role. However, there is little information regarding the needs and well-being of caregivers of individuals undergoing BMT. The study purpose was to gain a better understanding of the BMT experience across the trajectory from the perspective of the family caregiver. Qualitative interviews were conducted with 15 family caregivers during and 4 months after BMT. Interviews were recorded, transcribed verbatim, and analyzed using a content analysis approach. Uncertainty and need for more information were 2 major underlying themes noted across the early BMT trajectory. Caregivers reported feeling overwhelmed and juggling multiple roles, including (a) "interpreter," which included obtaining and translating medical information to their partner, family, and social network; (b) "organizer," which included arranging and coordinating medical appointments (pre- and post-BMT) for the patient, but also juggling the needs of immediate and extended family members; and (c) "clinician," which included assessing and identifying changes in their significant other, wit...Continue Reading

References

Jul 2, 2003·Cancer Nursing·Gea A HuizingaJosette E H M Hoekstra-Weebers
Dec 24, 2008·Bone Marrow Transplantation·B L FifeT E Stump
Jan 29, 2009·Biology of Blood and Marrow Transplantation : Journal of the American Society for Blood and Marrow Transplantation·Michelle M Bishop
May 29, 2012·Bone Marrow Transplantation·M L SpathL L Wood
Jun 27, 2012·Bone Marrow Transplantation·E M Wulff-BurchfieldB N Savani

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Citations

Jan 31, 2019·Revista latino-americana de enfermagem·Ingrid Meireles GomesLuana Tonin
Mar 10, 2019·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Jaime M PreusslerEllen M Denzen
Jan 31, 2018·Palliative & Supportive Care·Christina MangurianJulia Kearney
May 1, 2018·Current Hematologic Malignancy Reports·Lauren R BangerterNandita Khera
Sep 21, 2018·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Alex J FauerSung Won Choi
Mar 23, 2021·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Nicole B BeckmannTerrah F Akard

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