Abstract
The purpose of this study was to measure the growth of the Cerebral Palsy (CP) Research Network towards becoming a Learning Health Network in order to guide future development. Thirteen CP Research Network leaders completed the Network Maturity Grid (NMG) which consists of six domains with eight to 10 components each. The six domains are Systems of Leadership, Governance and Management, Quality Improvement, Engagement and Community, Data and Analytics, and Research. Radar mapping was utilized to display mean scores on a 5-point ordinal scale (1 = not started to 5 = idealized state) across domains and for individual components within domains. Consensus was reached for top priorities for the next 3-5 years. Domain scores ranged from 2.4 in Quality Improvement to 3.2 in System of Leadership. The lowest scoring component was clinician clinical decision support and the highest was common purpose. The following priority areas of focus were agreed upon moving forward: development of leaders, financial sustainability, quality improvement education and training, patient reported data, data quality and validation, and primary data collection. Results from this project will be utilized for strategic planning to improve the network. Conduc...Continue Reading
References
Jun 20, 2006·Developmental Medicine and Child Neurology·Ann-Christin EliassonPeter Rosenbaum
Jun 19, 2007·European Journal of Paediatric Neurology : EJPN : Official Journal of the European Paediatric Neurology Society·Guro L AndersenTorstein Vik
Jul 6, 2010·Inflammatory Bowel Diseases·Wallace CrandallPeter Margolis
Jan 1, 2009·Disability and Health Journal·Carrie L ArnesonNancy S Doernberg
Jun 17, 2011·Journal of Child Neurology·Donna S HurleyJulius P Dewald
Jun 29, 2011·Developmental Medicine and Child Neurology·Mary Jo Cooley HideckerKara Taylor
Oct 15, 2013·Developmental Medicine and Child Neurology·Deborah ChristensenMarshalyn Yeargin-Allsopp
Dec 7, 2013·Academic Pediatrics·Carole M Lannon, Laura E Peterson
Jun 11, 2015·Circulation. Cardiovascular Quality and Outcomes·Jeffrey B AndersonUNKNOWN National Pediatric Cardiology Quality Improvement Collaborative
Aug 23, 2016·Developmental Medicine and Child Neurology·Linda P LowesUNKNOWN ‘Learn from Every Patient’ Study Group
Aug 26, 2016·Neurology·Codrin LunguJonathan W Mink
Sep 1, 2016·Journal of Oncology Practice·Nikhil G ThakerSteven J Frank
Mar 23, 2017·The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques·Charlene M T RobertsonJohn C Andersen
May 13, 2017·Physical Therapy·Walter R FronteraAiko Thompson
Aug 5, 2017·Health Services Research·Christopher B ForrestKamila B Mistry
Feb 14, 2018·BMJ Quality & Safety·Maria T BrittoMichael Seid
Aug 23, 2018·Developmental Medicine and Child Neurology·Paul H GrossUNKNOWN cerebral palsy research network
Nov 27, 2018·Seminars in Pediatric Surgery·Katherine J DeansChristopher B Forrest
Jun 18, 2019·Cardiology in the Young·Carol J ProsperoUNKNOWN Pediatric Heart Network Investigators
Feb 6, 2021·Archives of Rehabilitation Research and Clinical Translation·Paul GrossUNKNOWN Cerebral Palsy Research Network