The challenges with managing polycystic ovary syndrome: A qualitative study of women's and clinicians' experiences.

Patient Education and Counseling
Tessa CoppJesse Jansen

Abstract

To explore clinicians' and women's views and experiences with managing polycystic ovary syndrome (PCOS). Semi-structured interviews with 36 clinicians and 26 women with PCOS. Clinicians were recruited through advertising via relevant professional organisations, snowballing and contacting clinics across Australia. Women with PCOS were recruited through social media advertising. Transcribed audio-recordings were analysed thematically using Framework analysis. Findings across women with PCOS and clinician interviews were organised into three themes. Both women and clinicians experienced 1) challenges with managing PCOS, often stemming from the disparate and wide spectrum of presentations, issues with current treatment options (including limited evidence) and the long-term nature of management. Both spoke about 2) online information about PCOS and alternative treatments, including lack of relevant information and widespread misinformation. 3) Follow-up and continuity of care, where we found notable differences between women's and clinicians' expectations. This is the first study to explore both clinicians' and women's experiences with managing PCOS, illustrating several challenges in managing this heterogeneous condition. Clarifyin...Continue Reading

References

Jul 8, 2011·The Cochrane Database of Systematic Reviews·Lisa J MoranHelena J Teede
Sep 21, 2013·BMC Medical Research Methodology·Nicola K GaleSabi Redwood
Oct 30, 2016·American Journal of Obstetrics and Gynecology·Amy S DhesiSara S Morelli
Aug 12, 2016·Nature Reviews. Disease Primers·Ricardo AzzizBulent O Yildiz
Jan 26, 2017·Human Reproduction·Rui Wang, Ben Willem J Mol
Mar 23, 2017·Journal of Advanced Nursing·Julie TomlinsonGayle Letherby
Aug 18, 2017·BMJ : British Medical Journal·Tessa CoppKirsten McCaffery
Dec 4, 2019·Clinical Obesity·Thanusha AnanthakumarPaul Aveyard
Apr 26, 2020·The Lancet. Diabetes & Endocrinology·Charlotte AlburyUNKNOWN Language Matters working group
Dec 12, 2020·Women's Health Issues : Official Publication of the Jacobs Institute of Women's Health·Rebecca S LightEmily McBride

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Advance for Nurse Practitioners
P Sonnenstuhl
Gynecological Endocrinology : the Official Journal of the International Society of Gynecological Endocrinology
Ming Fong YiiXinlin Zhan
© 2021 Meta ULC. All rights reserved