The clinical and psychometric validation of a questionnaire to assess the quality of life of adult patients treated with long-term parenteral nutrition

JPEN. Journal of Parenteral and Enteral Nutrition
Janet P BaxterAlastair W McKinlay

Abstract

Home parenteral nutrition (HPN) is an established treatment for the management of patients with chronic intestinal failure. No quality-of-life assessment tools have been developed and validated specifically for this patient population, and previous studies have used generic instruments or techniques not validated in HPN. The assessment of quality of life (QOL) should produce clinically relevant data reflecting patients' issues. The HPN-QOL was designed to assess the QOL of HPN patients. The purpose of this study was to test the hypothesized scale structure of the questionnaire with regard to reliability and validity in a sample of patients. A provisional questionnaire was prepared following recognized guidelines and then subjected to field testing. The questionnaire was administered to 100 adult patients receiving HPN. Psychometric tests examined the reliability and validity of the questionnaire, and patients' debriefing comments were analyzed. The provisional questionnaire was adapted using evidence from quantitative and qualitative analysis. Multitrait scaling analysis and face validity refined the questionnaire to 48 items. Compliance rates were high, and the questionnaire was well accepted. A method of objectively assessing...Continue Reading

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Citations

Oct 2, 2012·Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition·Michael KollerUNKNOWN Clinical Nutrition Guideline Group
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Nov 20, 2013·JPEN. Journal of Parenteral and Enteral Nutrition·Darlene G KellyMarion F Winkler
Sep 26, 2012·JPEN. Journal of Parenteral and Enteral Nutrition·Donald F KirbyDorothy M Emery
Jan 15, 2014·JPEN. Journal of Parenteral and Enteral Nutrition·Marion F Winkler, Carol E Smith
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Jan 22, 2019·Clinical Nutrition ESPEN·Léa Chantal TranRakesh Vora
Apr 4, 2021·JPEN. Journal of Parenteral and Enteral Nutrition·Dane Christina DaoudJohane P Allard
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Sep 4, 2021·Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition·Cristina CuerdaUNKNOWN Home Artificial Nutrition & Chronic Intestinal Failure Special Interest Group of ESPEN

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Software Mentioned

Multitrait Analysis Program ( MAP )
QOL
STATA
HPN
Statistical Package for the Social Sciences ( SPSS )

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