The compound role of a coordinator for home-dwelling persons with dementia and their informal caregivers: qualitative study.

BMC Health Services Research
Stein Erik FæøFrøydis Kristine Bruvik

Abstract

As the number of persons with dementia is increasing, there has been a call for establishing sustainable clinical pathways for coordinating care and support for this group. The LIVE@Home.Path trial is a multicomponent, multi-disciplinary intervention combining learning, innovation, volunteer support and empowerment. To implement the intervention, a municipal coordinator has a crucial role. Implementation research on multicomponent interventions is complex and we conducted a qualitative study, aiming to explore the coordinator role and how a coordinator may empower persons with dementia in decision-making processes. Qualitative program evaluation combined with a hermeneutic interpretive approach was chosen as methodological approach. Sixteen dyads, consisting of the person with dementia and their main informal caregiver received the intervention by two coordinators. Of these, six dyads, three informal caregivers alone and the two care coordinators along with their leader, in sum, eighteen persons, participated in in-depth or focus group interviews, sharing their experiences after 6 months intervention. We found that the coordinators fulfilled three functions for the participating dyads: being a safety net, meaning that the dyads...Continue Reading

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Citations

Sep 17, 2021·BMC Medical Informatics and Decision Making·Nathalie Genevieve PuaschitzBettina Sandgathe Husebo

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NCT04043364

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