The context of collecting family health history: examining definitions of family and family communication about health among African American women

Journal of Health Communication
Tess ThompsonKimberly A Kaphingst

Abstract

Public health initiatives encourage the public to discuss and record family health history information, which can inform prevention and screening for a variety of conditions. Most research on family health history discussion and collection, however, has predominantly involved White participants and has not considered lay definitions of family or family communication patterns about health. This qualitative study of 32 African American women-16 with a history of cancer-analyzed participants' definitions of family, family communication about health, and collection of family health history information. Family was defined by biological relatedness, social ties, interactions, and proximity. Several participants noted using different definitions of family for different purposes (e.g., biomedical vs. social). Health discussions took place between and within generations and were influenced by structural relationships (e.g., sister) and characteristics of family members (e.g., trustworthiness). Participants described managing tensions between sharing health information and protecting privacy, especially related to generational differences in sharing information, fear of familial conflict or gossip, and denial (sometimes described as refu...Continue Reading

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Citations

Mar 15, 2018·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·Jielu LinLaura M Koehly
Jun 19, 2019·Health Education & Behavior : the Official Publication of the Society for Public Health Education·Gemme Campbell-SalomeJennifer Freytag
May 20, 2020·Family & Community Health·Lindsay J DellaTania B Basta
Oct 13, 2019·Journal of Genetic Counseling·Manusheela PokharelKimberly A Kaphingst
Jul 4, 2020·Personalized Medicine·Divya TalwarLei-Shih Chen
Dec 3, 2016·The American Journal of Bioethics : AJOB·Gwendolyn P Quinn, Susan T Vadaparampil
Sep 2, 2018·Journal of Community Genetics·Kunal SanghaviJoann Bodurtha
Nov 20, 2020·Preventing Chronic Disease·Melinda KrakowRobin C Vanderpool

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