The Contribution of Parent and Family Variables to the Well-Being of Youth With Arthritis

Journal of Family Nursing
Kathleen KnaflMargarete Sandelowski

Abstract

Among developed countries, the reported prevalence of juvenile idiopathic arthritis (JIA) varies from 16 to 150 per 100,000. Previous reviews have identified risks faced by children with chronic conditions and indicate a relationship between parent/family characteristics and child adaptation. This analysis provides a mixed-methods synthesis of 29 research reports addressing the intersection of family life and JIA. Data were extracted using a structured template, and effect sizes were calculated for reported relationships between variables. Results were coded using a scheme that differentiated types of family factors. Meta-analysis revealed a moderately strong positive relationship between parent and child psychological functioning, and a medium negative relationship between family conflict and child psychosocial well-being, and parental depression and child physical functioning. Thematic analysis of qualitative results identified parenting challenges related to pain management and regimen demands. Results indicate that interventions to enhance parenting competence and family relationships may improve caregiver and patient outcomes.

References

Feb 1, 1992·Journal of Pediatric Psychology·L S Walker, J L Zeman
Feb 1, 1991·Journal of Pediatric Psychology·L S Walker, J W Greene
Sep 1, 1990·Journal of Child Psychology and Psychiatry, and Allied Disciplines·I H Vandvik
Mar 1, 1988·Journal of Personality and Social Psychology·A DeLongisR S Lazarus
Jun 1, 1988·Journal of Personality and Social Psychology·D WatsonA Tellegen
Jan 1, 1983·International Journal of Psychiatry in Medicine·G M DevinsR D Guttmann
Mar 1, 1984·Journal of the American Academy of Child Psychiatry·E O PoznanskiR Gibbons
Feb 1, 1983·American Journal of Community Psychology·M E Procidano, K Heller
Jun 1, 1983·Acta Psychiatrica Scandinavica·A S Zigmond, R P Snaith
Jul 1, 1982·Nursing Research·C S Roberts, S L Feetham
Aug 1, 1993·Journal of Pediatric Psychology·J K Austin, T J Huberty
Jan 1, 1996·International Journal of Psychiatry in Medicine·D A Beck, H G Koenig
Jun 1, 1997·Journal of Pediatric Psychology·C R SnyderK J Stahl
Aug 8, 1998·Pain·G J ReidP J McGrath
Oct 3, 2002·The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine·Kathleen M Cuneo, Kathleen M Schiaffino
Dec 20, 2002·Journal of Pediatric Psychology·Jennifer Soriano LeBovidgeMichael L Miller
Feb 25, 2003·Archives of Disease in Childhood·N WilkinsonJ Gardner-Medwin
Jun 17, 2003·Journal of Pediatric Psychology·Vicki S HelgesonOscar Barbarin
Jul 3, 2003·Clinical Child and Family Psychology Review·Jelani Mandara
Jul 26, 2003·Family Process·Maja DekovićNicole M C Van As
Apr 8, 2004·Qualitative Health Research·Ted McNeill
Jun 10, 2004·Journal of Pediatric Psychology·Catherine Cant Peterson, Tonya Mizell Palermo
Mar 31, 2005·Journal of Family Psychology : JFP : Journal of the Division of Family Psychology of the American Psychological Association (Division 43)·David B HenryDeborah Gorman-Smith
Jul 8, 2005·MCN. the American Journal of Maternal Child Nursing·Thomas W Connelly
Oct 6, 2005·Qualitative Health Research·Hsiu-Fang Hsieh, Sarah E Shannon
Mar 15, 2006·Epilepsia·Roos RodenburgAlbert P Aldenkamp
May 16, 2006·Autoimmunity Reviews·Andrea T BorchersM Eric Gershwin
Sep 22, 2006·The Clinical Journal of Pain·Lynn S WalkerWilliam E Whitehead
Feb 20, 2007·The Journal of Pediatrics·Catherine B McClellan, Lindsey L Cohen
Mar 6, 2007·Lancet·Angelo Ravelli, Alberto Martini
Jul 17, 2007·The Journal of Pain : Official Journal of the American Pain Society·Keri R HainsworthSteven J Weisman
Oct 24, 2007·Joint, Bone, Spine : Revue Du Rhumatisme·Alessandra BrunsJamil Natour
Jul 28, 2009·Journal of Clinical Epidemiology·David MoherUNKNOWN PRISMA Group

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Citations

Aug 19, 2015·Journal of Family Theory & Review·Jennifer LeemanKathleen Knafl
Feb 27, 2018·Rheumatology and Therapy·Shelly Heath-Watson, Sangeeta Sule
Mar 2, 2018·Journal of Clinical Nursing·Jenny Edmonds, Alison Twycross
Mar 30, 2019·Haemophilia : the Official Journal of the World Federation of Hemophilia·Kate KhairSylvia von Mackensen
Jan 16, 2020·Pediatric Rheumatology Online Journal·Marcia Daniela Torres-MadeNadina Eugenia Rubio-Pérez
Jun 17, 2020·International Journal of Nursing Knowledge·Trinidad Jarana-DíazNerea Jiménez-Picón

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