The development and user evaluation of health behaviour change resources for teenage and young adult Cancer survivors.

Research Involvement and Engagement
Gemma PughAbigail Fisher

Abstract

This paper describes the methods that were used to develop a health behaviour intervention specifically for teenage and young adult cancer survivors (TYACS). The program of work, carried out in partnership with CLIC Sargent (a UK based cancer charity for children and young people) was guided by The Behaviour Change Intervention Design Process. A systematic review of existing intervention studies was carried out and TYACS were surveyed on their interest in receiving health behaviour information and their preference regarding the format, delivery and timing of such information. Health professionals were also surveyed to gather their views on how health behaviour information would be best delivered to young people with cancer. The results of these studies informed the development of a collection of health behaviour change intervention resources containing comprehensive lifestyle information and behaviour change support tools. TYACS and TYA health professionals were invited to review and provide feedback on the relevance, appeal and usability of the resources. It is hoped that by involving TYACS and TYA representatives at every stage of intervention development the problem of low uptake and adherence commonly encountered during int...Continue Reading

References

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May 23, 2015·The Proceedings of the Nutrition Society·Lou Atkins, Susan Michie
Feb 13, 2016·Journal of Adolescent and Young Adult Oncology·Gemma PughAbigail Fisher
Aug 31, 2016·International Journal of Medical Informatics·Nuno RibeiroFilipe Santos-Silva
Dec 13, 2016·Journal of Child Psychology and Psychiatry, and Allied Disciplines·Chris HollisE Bethan Davies
Oct 26, 2015·Pilot and Feasibility Studies·Pat Hoddinott
Feb 7, 2017·Journal of Adolescent and Young Adult Oncology·Gemma PughAbigail Fisher
Jul 21, 2017·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Gemma PughAbigail Fisher

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Citations

Aug 30, 2018·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·S M SawyerM McCarthy

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