The Development and Validation of the CARe Burn Scale-Adult Form: A Patient-Reported Outcome Measure (PROM) to Assess Quality of Life for Adults Living with a Burn Injury

Journal of Burn Care & Research : Official Publication of the American Burn Association
Catrin GriffithsDiana Harcourt

Abstract

Patient-Reported Outcome Measures (PROMs) identify vital information about patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale-Adult Form: a PROM that assesses quality of life in adults living with a burn injury. Eleven patients, 10 family members and 4 health professional interviews, and a systematic review informed the development of a conceptual framework and a draft measure. Cognitive debriefing interviews conducted with three adult burn patients, one family member, and eight health professionals provided feedback to ascertain content validity of the measure. The measure was then field tested with 304 adult burn patients. Rasch psychometric analysis was conducted for scale reduction, and traditional psychometric analyses provided a comparison with other measures. Further psychometric testing with an additional 118 adult burn patients tested the shortened CARe Burn Scale in relation to other quality of life PROMs. The conceptual framework outlined 14 domains; 12 of which fulfilled Rasch and traditional psychometric analyses. Two individual scales did not fulfill the Rasch criteria and were retained as checklists. Individual CARe Burn Scales correlated moderately-t...Continue Reading

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Citations

Sep 10, 2020·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Catrin GriffithsDiana Harcourt
Feb 15, 2020·Nature Reviews. Disease Primers·Marc G JeschkeSarvesh Logsetty
Apr 6, 2021·Burns : Journal of the International Society for Burn Injuries·Noora-Ilona LahdenperäAndrew Lindford
Jul 23, 2021·Journal of Burn Care & Research : Official Publication of the American Burn Association·Taryn E TravisJeffrey W Shupp
Oct 14, 2021·Journal of Burn Care & Research : Official Publication of the American Burn Association·Dagmar AmtmannNicole Gibran
Nov 1, 2021·Journal of Burn Care & Research : Official Publication of the American Burn Association·Byungsoo KangSeongjun Jo

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