The development of an online decision aid to support persons having a genetic predisposition to cancer and their partners during reproductive decision-making: a usability and pilot study

Familial Cancer
Kelly ReumkensL A D M van Osch

Abstract

An online decision aid to support persons having a genetic predisposition to cancer and their partners during reproductive decision-making was developed. A two-phase usability test was conducted among 12 couples (N = 22; 2 persons participated without their partner) at risk for hereditary cancer and 15 health care providers. Couples and health care providers expressed similar suggestions for improvements, and evaluated the modified decision aid as acceptable, easy to use, and comprehensible. The final decision aid was pilot tested (N = 16) with paired sample t tests comparing main outcomes (decisional conflict, knowledge, realistic expectations regarding the reproductive options and decision self-efficacy) before (T0), immediately (T1) and 2 weeks after (T2) use of the decision aid. Pilot testing indicated decreased decisional conflict scores, increased knowledge, and improved realistic expectations regarding the reproductive options, at T1 and T2. No effect was found for couples' decision self-efficacy. The positive findings during usability testing were thus reflected in the pilot study. The decision aid will be further evaluated in a nationwide pretest-posttest study to facilitate implementation in the onco-genetic counselli...Continue Reading

References

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Citations

Oct 2, 2019·Cold Spring Harbor Perspectives in Medicine·Shannon RegoKelly E Ormond
Jun 22, 2021·Medical Decision Making : an International Journal of the Society for Medical Decision Making·Holly O WittemanRobert J Volk
Sep 14, 2020·Journal of Pediatric Urology·Katherine H ChanSarah Wiehe
Nov 3, 2021·European Journal of Human Genetics : EJHG·Emily KingBelinda J McClaren

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