The different perspectives of patients, informal caregivers and professionals on patient involvement in primary care teams. A qualitative study

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
Kirti D DoekhieJaap Paauwe

Abstract

Patient involvement in the decision-making process, especially for chronically ill elderly patients, has become an important element of patient-centred primary care in many countries, including the Netherlands. This study openly explores different perspectives of patients, informal caregivers and primary care professionals on patient involvement in primary care team interactions. Sixty-four qualitative semi-structured interviews with chronically ill elderly patients, informal caregivers and primary care professionals from various disciplines. Underpinned by a phenomenology approach, this study used conventional content analysis for data analysis. Participants have different views of the roles of patients and informal caregivers in the primary care team and thus different expectations of the extent and level of patient involvement. Three challenges impact patient involvement in the team: (a) patients feel misunderstood and less involved that they would like when professionals take control, (b) patients have to balance the conflicting opinions of different professionals and (c) informal caregivers act undesirably as team leaders due to their own view of the level of patient involvement. Patient involvement is formed in complex in...Continue Reading

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Citations

Sep 14, 2019·Health & Social Care in the Community·Marian J T van Het Bolscher-NiehuisAnneke L Francke
Aug 28, 2019·Global Heart·Sharon MitchellLaurence Sperling
Dec 21, 2019·Health & Social Care in the Community·Jasneet ParmarPeter George J Tian
Oct 2, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Martina Buljac-SamardzicJeroen D H van Wijngaarden

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