The discordance of information needs between cancer patients and their families in China

Patient Education and Counseling
Ting-wu YiYu Jiang

Abstract

We aimed at studying information needs of patients and their families, and their attitude towards the counterparts' information needs. Factors influencing psychological status of patients were investigated. Self-designed questionnaires for information needs and attitude were delivered to participants. Patient Health Questionnaire 9-item and Generalized Anxiety Disorder 7-item scale were used to evaluate psychological status of patients. 183 eligible pairs of patients and families were involved. Except for the patients' expected life span, most patients and families needed information for all other subscales of disease-related information. Most patients wished families know more information; however, caregivers tended to prevent this. The occurrence of patients' psychiatric disorders was related to their needs for expected life span (OR 3.06 95%CI 1.36-6.93), as well as the attitude of caregivers about whether to provide more information about treatment outcomes (OR 0.24 95% CI 0.10-0.63). Information discordance between cancer patients and their families tended to happen when it came to patients' prognostic information. The psychological status of cancer patients was found in association with their information needs and familie...Continue Reading

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Citations

Oct 1, 2020·Journal of Palliative Medicine·Tamryn F GrayAreej El-Jawahri
Aug 18, 2020·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Panpan CuiChangying Chen
Jun 14, 2019·JBI Database of Systematic Reviews and Implementation Reports·Kate KynochAnnie McArdle
Jun 5, 2020·European Journal of Cancer Care·Verena Shuwen WuAfaf Girgis

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