The dying parent and dependent children: a nationwide survey of hospice and community palliative care support services

BMJ Supportive & Palliative Care
Jane Cockle-HearneEmma Ream

Abstract

Annually, across the world a substantial number of dependent children experience the death of a parent through life-limiting illness. Without support, this has long-term implications for children's emotional, social and physical well-being, impacting on health and social care services globally. Limited information exists on how service providers are meeting family needs when a parent with dependent children is dying. To determine the bereavement support provided to families with dependent children by UK hospices before and after a parent's death. A 23-item, cross-sectional, web-based survey of adult UK hospices. Closed and open-ended questions were asked about the features of support provided; open-ended response was sought to a question about the challenges faced by hospices in delivering support. Descriptive and non-parametric statistics and framework analysis were used to analyse the data. 197 hospices were invited to participate. Response rate was 66% (130/197). More types of support were provided after, than before, parental death (mean 6.36/5.64, z=-5.767, p<0001). Twenty-two per cent of hospices reported no formal processes for asking or documenting the presence of dependent children. Volunteers were an underused resourc...Continue Reading

Citations

Jun 19, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Eilís McCaughanJeffrey R Hanna

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