The effect of caregiving on bereavement outcome: study protocol for a longitudinal, prospective study

BMC Palliative Care
Lauren J BreenMoira O'Connor

Abstract

The aim of the current study is to determine the effects of caregiving on bereavement outcome. The study will address two important gaps in the research literature: (1) the relationship between pre-death distress and post-death outcomes and (2) family caregivers' anticipation and preparation of the death of the person for whom they care. We will conduct a longitudinal, prospective study of adult family caregivers of adult patients receiving palliative care. All participants will complete a questionnaire administered at four points - approximately 4-8 weeks prior to bereavement, and 3-4, 6-7, and 9-10 months post-bereavement. The questionnaire includes measures of multidimensional caregiving experiences (strain, distress, positive appraisals, and family wellbeing), caregiver prolonged grief, multidimensional grief responses (despair, panic behaviour, blame and anger, detachment, disorganisation, and personal growth), prolonged grief, quality of life, general health (psychological and physical) and demographics. These caregivers' data will be compared to a comparison group matched for age, sex, and postcode, allowing the caregivers' general health and quality of life to be compared to a normative group. The caregivers will also b...Continue Reading

References

Dec 1, 1987·Cancer Nursing·K Y Graham, A J Longman
May 29, 1999·Death Studies·G Gilliland, S Fleming
Jul 3, 1999·Psycho-oncology·B KellyD Battistutta
Jul 4, 2002·The American Journal of Geriatric Psychiatry : Official Journal of the American Association for Geriatric Psychiatry·Lisa C BarryHolly G Prigerson
Sep 18, 2002·Australian and New Zealand Journal of Public Health·Kristy Sanderson, Gavin Andrews
Sep 24, 2002·Death Studies·Nancy S Hogan, Lee A Schmidt
May 3, 2003·Palliative Medicine·Margaret StroebeHenk Schut
May 14, 2003·Clinical Nursing Research·Priscilla M Koop, Vicki R Strang
Mar 30, 2004·Palliative Medicine·Silvia Rossi FerrarioAnna Maria Zotti
May 5, 2005·Journal of Health and Social Behavior·Carol S AneshenselNoriko Yamamoto-Mitani
May 19, 2005·Journal of Personality and Social Psychology·George A BonannoSusan Folkman
Nov 22, 2005·Palliative Medicine·Samar M AounPeter L Hudson
Apr 20, 2007·Psycho-oncology·Alexis TomarkenHolly Prigerson
Oct 3, 2007·The Medical Journal of Australia·Katina KardamanidisLouisa R Jorm
Feb 19, 2008·The Medical Journal of Australia·Mark A MatherPeter J Ravenscroft
Aug 2, 2008·The American Journal of Geriatric Psychiatry : Official Journal of the American Association for Geriatric Psychiatry·Dan K KielySusan L Mitchell
Aug 5, 2009·PLoS Medicine·Holly G PrigersonPaul K Maciejewski
Feb 2, 2010·Social Science & Medicine·Beverley McNamara, Lorna Rosenwax
Feb 9, 2012·Australian and New Zealand Journal of Public Health·Samar M AounColleen Nordstrom
Dec 18, 2014·Journal of Palliative Medicine·Brenda Bentley, Moira O'Connor

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Citations

Jul 22, 2017·Journal of Palliative Medicine·Jun HamanoMitsunori Miyashita
Aug 2, 2018·The American Journal of Hospice & Palliative Care·Orrin D Ware, John G Cagle
Apr 22, 2018·BMC Palliative Care·Kento MasukawaMitsunori Miyashita
Jul 12, 2019·Death Studies·Ashton HayLauren J Breen
Mar 3, 2018·Journal of Pain and Symptom Management·Lauren J BreenGeorgia K B Halkett
Aug 22, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Keita TagamiMitsunori Miyashita

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