The engagement of children with disabilities in health-related technology design processes: identifying methodology.

Disability and Rehabilitation. Assistive Technology
M AllsopB Bhakta

Abstract

This review aims to identify research methodology that is suitable for involving children with disabilities in the design of healthcare technology, such as assistive technology and rehabilitation equipment. A review of the literature included the identification of methodology that is available from domains outside of healthcare and suggested a selection of available methods. The need to involve end users within the design of healthcare technology was highlighted, with particular attention to the need for greater levels of participation from children with disabilities within all healthcare research. Issues that may arise when trying to increase such involvement included the need to consider communication via feedback and tailored information, the need to measure levels of participation occurring in current research, and caution regarding the use of proxy information. Additionally, five suitable methods were highlighted that are available for use with children with disabilities in the design of healthcare technology. The methods identified in the review need to be put into practice to establish effective and, if necessary, novel ways of designing healthcare technology when end users are children with disabilities.

References

Jun 6, 1998·BMJ : British Medical Journal·C Hart, R Chesson
Aug 6, 1998·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·N C TheunissenJ M Wit
Sep 17, 1999·BMJ : British Medical Journal·M Dixon-WoodsD Heney
Apr 5, 2000·Disability and Rehabilitation·S J MulhollandS Balaram
Feb 28, 2001·International Journal of Language & Communication Disorders·M ClarkeP Wood
Jan 18, 2002·Journal of Urban Health : Bulletin of the New York Academy of Medicine·UNKNOWN New York City Department of Health HIV Epidemiology Group
Feb 6, 2002·Disability and Rehabilitation·Pape T Louise-BenderB Weiner
May 20, 2003·Journal of Advanced Nursing·Riitta-Liisa KortesluomaMerja Nikkonen
Sep 4, 2003·Clinical Rehabilitation·R DekkerH J ten Duis
Jul 22, 2004·Ambulatory Pediatrics : the Official Journal of the Ambulatory Pediatric Association·Anne W Riley
Jun 18, 2005·Qualitative Health Research·Lori G Irwin, Joy Johnson
Jun 15, 2006·Physiological Measurement·Jennifer L MartinBeverley J Norris
Nov 30, 2006·Psychology, Health & Medicine·UNKNOWN The National Institute Of Mental Health Multisite HIV Prevention Trial Group
Dec 23, 2006·BMJ : British Medical Journal·C Donald Combs
Jan 20, 2007·International Journal of Technology Assessment in Health Care·Syed Ghulam Sarwar Shah, Ian Robinson
May 26, 2007·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Christine N L Hogg
Jun 26, 2007·Research in Developmental Disabilities·Shira Yalon-Chamovitz, Patrice L Tamar Weiss
Sep 14, 2007·Augmentative and Alternative Communication : AAC·Janice LightLaura Pitkin
Feb 16, 2008·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Mala Bridgelal RamHeather C M Weir
Feb 22, 2008·Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community·Franco A CarnevalePatricia McKeever
Aug 23, 2008·Disability and Rehabilitation·Nicole DunnKaren J Dodd
Nov 26, 2008·Disability and Rehabilitation. Assistive Technology·Martine M Smith, Isobel Connolly
Nov 28, 2008·Disability and Rehabilitation·Christine Imms

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Citations

Jun 22, 2013·Disability and Rehabilitation. Assistive Technology·Pearl O'RourkeEugene Coyle
Mar 5, 2011·Disability and Rehabilitation. Assistive Technology·M AllsopR M Wilkie
Oct 18, 2014·Child: Care, Health and Development·S BaileyC Morris
Mar 6, 2018·International Journal of Health Care Quality Assurance·Tara Sims
Sep 7, 2017·International Journal of Technology Assessment in Health Care·Tara SimsMaggie Donovan-Hall
Mar 10, 2018·Disability and Rehabilitation. Assistive Technology·Heather A FeldnerJames C Galloway
Jan 18, 2019·Disability and Rehabilitation. Assistive Technology·Christina SwettStephen E Ryan
Mar 26, 2021·Disability and Rehabilitation. Assistive Technology·Karin van NiekerkKerstin Tönsing
Jul 22, 2020··Aurora ConstantinJerry Alan Fails

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