The experience of caring for a partner with young onset dementia: how younger carers cope

Dementia
Shirley Lockeridge, Jane Simpson

Abstract

A growing body of literature suggests that the social context of experiencing dementia at a younger age may influence carers' and particularly partners' subjective experience and coping strategies. The current paper aims to explore the coping strategies adopted by six carers in order to adapt to changes in their relationship with their partner with young onset dementia. All were recruited from the north west of England and interpretative phenomenological analysis was used to analyse the data. Four major themes were evident: (1) 'this is not happening': the use of denial as a coping strategy; (2) 'let's not have anymore of this demeaning [treatment]': stigma in young onset dementia; (3) 'I've had to fight every inch': struggling to maintain control of events and emotions; (4) 'what will become of me?': carers' adaptation to loss. Comparisons with existing literature are made and implications for clinical practice are considered.

References

Feb 1, 1992·Western Journal of Nursing Research·N S Redeker
Feb 1, 1988·The British Journal of Clinical Psychology·G Parry, C R Brewin
Jun 1, 1986·The Gerontologist·S H ZaritJ M Zarit
Aug 1, 1986·Journal of Consulting and Clinical Psychology·P A Thoits
Jun 1, 1995·The British Journal of Psychiatry : the Journal of Mental Science·A J NewensD W Kay
Jan 1, 1995·Journal of Clinical Nursing·O WilliamsM Nolan
May 1, 1993·Psychosomatic Medicine·R S Lazarus
Jan 16, 1998·Journal of Psychosomatic Research·R Goldbeck
Feb 7, 2003·International Journal of Geriatric Psychiatry·Marjolein E de VugtFrans R J Verhey
Jul 25, 2003·Social Science & Medicine·Linda Clare
Sep 18, 2004·Archives of Gerontology and Geriatrics·J C Millán-CalentiJ M Mayán-Santos
Jan 5, 2007·Clinical Psychology Review·Chris Barker, Nancy Pistrang
Feb 3, 2007·American Journal of Alzheimer's Disease and Other Dementias·Sam Kaiser, Peter K Panegyres
Apr 3, 2008·International Journal of Geriatric Psychiatry·Claudia CooperGill Livingston
Dec 17, 2008·Neurological Sciences : Official Journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology·Valentina E Di MatteiLucio Sarno
Jun 2, 2009·Frontiers in Bioscience (Scholar Edition)·Frank Strutz
Jun 2, 2009·Aging & Mental Health·Phyllis Braudy Harris, John Keady
Jan 22, 2010·Disability and Rehabilitation·David ToddCraig Murray

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Citations

Jan 5, 2014·Journal of Aging Studies·Ragnhild HedmanAstrid Norberg
Mar 20, 2016·Medicine, Health Care, and Philosophy·Mette BergmanMarja Schuster
Oct 30, 2016·International Journal of Geriatric Psychiatry·Joany K MillenaarMarjolein E de Vugt
Mar 31, 2015·American Journal of Alzheimer's Disease and Other Dementias·Francine DucharmeFlorence Pasquier
Feb 19, 2016·American Journal of Alzheimer's Disease and Other Dementias·Janet SansoniAnita Westera
Jun 18, 2017·Aging & Mental Health·Andrea MayrhoferClaire Goodman
Jun 21, 2017·Aging & Mental Health·Emilie WawrzicznyPascal Antoine
Jan 26, 2018·Issues in Mental Health Nursing·Karie R Kobiske, Abir K Bekhet
Jan 27, 2018·Neurodegenerative Disease Management·John H Spreadbury, Christopher M Kipps
Sep 27, 2018·Dementia·Maritza García-ToroFrancisco Javier Lopera
Oct 9, 2018·British Journal of Health Psychology·Georgie RaymentGemma Wilson
May 31, 2018·Health & Social Care in the Community·Mary LarkinAlisoun Milne
Sep 21, 2017·International Psychogeriatrics·Kristen Holdsworth, Marita McCabe
May 7, 2019·Scandinavian Journal of Caring Sciences·Perla WernerLilach Raviv Turgeman
Mar 11, 2020·International Psychogeriatrics·Jeroen BruinsmaMarjolein de Vugt
Jul 10, 2020·Journal of Geriatric Psychiatry and Neurology·Divyansh DixitChristopher Kipps
Aug 21, 2020·Psychogeriatrics : the Official Journal of the Japanese Psychogeriatric Society·Shuichi AwataTatsuyuki Kakuma
Sep 26, 2020·Dementia & Neuropsychologia·Helen DurganteNaoko Kishita
Apr 14, 2016·International Psychogeriatrics·Angela RichardsonNan Greenwood
Jan 29, 2017·Psychogeriatrics : the Official Journal of the Japanese Psychogeriatric Society·Emilie WawrzicznyPascal Antoine
Jun 24, 2017·International Journal of Geriatric Psychiatry·Joany K MillenaarMarjolein E de Vugt
Mar 8, 2020·BMC Health Services Research·Clarissa GiebelAnna Pearson
Dec 5, 2020·British Journal of Community Nursing·John H Spreadbury, Christopher M Kipps

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