The experience of stigma in inflammatory bowel disease: An interpretive (hermeneutic) phenomenological study

Journal of Advanced Nursing
Lesley DibleyElizabeth Whitehead

Abstract

To explore experiences of stigma in people with inflammatory bowel disease. Diarrhoea, urgency and incontinence are common symptoms in inflammatory bowel disease. Social rules stipulate full control of bodily functions in adulthood: poor control may lead to stigmatization, affecting patients' adjustment to disease. Disease-related stigma is associated with poorer clinical outcomes, but qualitative evidence is minimal. An interpretive (hermeneutic) phenomenological study of the lived experience of stigma in inflammatory bowel disease. Forty community-dwelling adults with a self-reported diagnosis of inflammatory bowel disease were recruited purposively. Participants reported feeling stigmatized or not and experiencing faecal incontinence or not. Unstructured interviews took place in participants' homes in the United Kingdom (September 2012 - May 2013). Data were analysed using Diekelmann's interpretive method. Three constitutive patterns-Being in and out of control, Relationships and social Support and Mastery and mediation-reveal the experience of disease-related stigma, occurring regardless of continence status and because of name and type of disease. Stigma recedes when mastery over disease is achieved through development of ...Continue Reading

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Citations

Dec 10, 2019·Scandinavian Journal of Gastroenterology·Jessica RyhlanderSofie Jakobsson
Sep 21, 2019·Psychology & Health·Elia-Jade PolakMegan Oaten
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Aug 8, 2021·International Journal of Environmental Research and Public Health·Kate MuseAnnabel L David
Aug 3, 2021·Neurogastroenterology and Motility : the Official Journal of the European Gastrointestinal Motility Society·Tiffany H TaftLinda Nguyen

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