The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers: A review of the literature using meta-aggregative synthesis and an appraisal of rigor.

Journal of Intellectual Disabilities : JOID
Andrew MaineMaria Truesdale

Abstract

People with intellectual disabilities (ID) experience significant barriers to diabetes self-management (DSM), yet there remains a paucity of research within this population. An overview of the literature on people with ID and their caregivers' experiences of living with and self-managing type 2 diabetes is provided. Meta-aggregative methods were adopted to synthesize results, and an appraisal was reported of rigor. A total of eight studies met the inclusion criteria and four themes were extracted: (i) "Frustration over lifestyle adjustments," (ii) "Limited understanding and inadequate educational resources," (iii) "Limited training and knowledge in staff," and (iv) "Potential for effective DSM with appropriate support." Current support is inadequate to meet the needs of people with ID and their caregivers self-managing diabetes. Structured education to improve health literacy and diabetes knowledge in people with ID is required, together with training for caregivers which leads to a culture of nurturing autonomy.

References

Oct 26, 1999·The British Journal of Clinical Psychology·R ElliottD L Rennie
Feb 16, 2008·BMJ : British Medical Journal·M J DaviesUNKNOWN Diabetes Education and Self Management for Ongoing and Newly Diagnosed Collaborative
Oct 1, 2011·Journal of Intellectual Disability Research : JIDR·M CardolH van Schrojenstein Lantman-de Valk
Dec 20, 2011·Patient Education and Counseling·Mieke CardolHenny van Schrojenstein Lantman-de Valk
Apr 5, 2012·Journal of Applied Research in Intellectual Disabilities : JARID·Catherine DyschJudy Fox
Apr 5, 2012·Journal of Applied Research in Intellectual Disabilities : JARID·Lucy PatersonBill Lindsay
Jan 7, 2014·PLoS Biology·Janelle Weaver
May 16, 2014·Diabetic Medicine : a Journal of the British Diabetic Association·K McVillyJ Speight
Aug 12, 2015·International Journal of Evidence-based Healthcare·Craig LockwoodKylie Porritt
Oct 27, 2015·Research in Developmental Disabilities·Siobhan MacRaeMelanie Davies
Nov 4, 2015·Journal of Applied Research in Intellectual Disabilities : JARID·Janet RobertsonChris Hatton
Feb 4, 2016·Journal of Intellectual Disability Research : JIDR·L C WhiteheadJ Conder

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