The extent, quality and impact of patient and public involvement in primary care research: a mixed methods study

Research Involvement and Engagement
Steven BlackburnClare Jinks

Abstract

In the UK, more patients go to primary care than other parts of the health service. Therefore it is important for research into primary care to include the insights and views of people who receive these services. To explore the extent, quality and impact of patient and public involvement (PPI) in primary care research, we examined documents of 200 projects and surveyed 191 researchers.We found that about half of studies included PPI to develop research ideas and during the study itself. Common activities included designing study materials, advising on methods, and managing the research. Some studies did not undertake the PPI activities initially planned and funded for. PPI varied by study design, health condition and study population. We found pockets of good practice: having a PPI budget, supporting PPI contributors, and PPI informing recruitment issues. However, good practice was lacking in other areas. Few projects offered PPI contributors training, used PPI to develop information for participants about study progress and included PPI to advise on publishing findings.Researchers reported beneficial impacts of PPI. Most impact was reported when the approach to PPI included more indicators of good practice. The main cost of PP...Continue Reading

References

Feb 16, 2000·Family Practice·R Jones
Jun 14, 2003·BMJ : British Medical Journal·William R Phillips, Garry D Grams
Aug 28, 2003·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Hazel ThorntonGlyn Elwyn
Jul 16, 2010·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·David WrightRoger Wilson
Oct 19, 2011·International Journal of Technology Assessment in Health Care·Sophie StaniszewskaRosemary Barber
Jul 20, 2012·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Jo BrettRashida Suleman
Sep 14, 2013·The British Journal of Psychiatry : the Journal of Mental Science·Liam Ennis, Til Wykes
Nov 28, 2013·Qualitative Health Research·Jill ThompsonRosemary Barber
Feb 27, 2014·BMC Health Services Research·Juan Pablo DomecqMohammad Hassan Murad
Dec 1, 2013·Journal of Care Services Management·Clare JinksBie Nio Ong
May 18, 2017·Aging & Mental Health·Dianne GoveUNKNOWN European Working Group of People with Dementia
Jul 31, 2015·Research Involvement and Engagement·Kristina Staley
Jan 14, 2016·Research Involvement and Engagement·Clare JinksBie Nio Ong

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Citations

Nov 24, 2018·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Carolyn A Chew-Graham
Mar 31, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Anne-Marie BoylanSophie Staniszewska
Apr 20, 2019·Archives of Disease in Childhood·Jenny PrestonBob Phillips
Sep 7, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Lidewij Eva VatJacqueline E W Broerse
Dec 7, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Donna L LittlewoodNavneet Kapur
Feb 6, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Sarah ToddRaymond Randall
May 2, 2020·The British Journal of General Practice : the Journal of the Royal College of General Practitioners·Ben BowersStephen Barclay
May 5, 2020·The American Journal of Bioethics : AJOB·Jonas Lander, Marie-Luise Dierks
May 21, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Fiona WardEsmaeil Khedmati-Morasae
Aug 19, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Jahanara MiahSuzanne Parsons
Jan 11, 2020·Journal of the Royal Society of Medicine·Grace TurnerMelanie Calvert
Nov 7, 2019·ANS. Advances in Nursing Science·Katrine StaatsOscar Tranvåg
Apr 2, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Mary MaddenJim McCambridge
Jul 24, 2020·Research Involvement and Engagement·Pernille Christiansen SkovlundKirsten Lomborg
Jul 18, 2020·The Patient·Magda AguiarTracey-Lea Laba
Jun 20, 2020·Research Involvement and Engagement·L Luna Puerta, H E Smith
Jun 23, 2020·Research Involvement and Engagement·Raphaela E Kaisler, Benjamin Missbach
Mar 7, 2021·BMC Family Practice·Georgios Dimitrios KarampatakisKath Ryan
Apr 1, 2021·Research Involvement and Engagement·Hae-Ra HanCheryl Dennison-Himmelfarb
Dec 11, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Jane DesboroughChristine Phillips
Dec 21, 2021·Acta Oncologica·Anna SchandlPernilla Lagergren

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