The forgotten people in British public health: a national neglect of the dying, bereaved and caregivers

BMJ Supportive & Palliative Care
Aliki Karapliagou, Allan Kellehear

Abstract

The clinical and social epidemiology of living with a life-threatening or life-limiting illness, frail ageing, long-term caregiving, and grief and bereavement is well documented in the palliative care, psycho-oncology and psychiatric literature but this investigation asks what interest exists from the mainstream public health sector in these health and illness experiences. This paper reports a content analysis of 7 key British public health journals, 14 major public health textbooks and 3 public health websites employing key word and synonym searches to assess the size and quality of interest in populations related to ageing, dying, caregiving, and grief and bereavement. Compared with other public health issues, such as obesity and tobacco use, for examples, interest in the social experience and epidemiology of end-of-life experiences is extremely low. Reasons for this lack of interest are explored.

References

Aug 1, 1993·American Journal of Public Health·S M Rosen
Dec 11, 2007·Lancet·Margaret StroebeWolfgang Stroebe
Sep 26, 2008·Journal of Aging and Health·Chong-Wen WangZhifan Xiong
Oct 22, 2008·Journal of Social Work in End-of-life & Palliative Care·Malcolm Payne
Jun 15, 2010·Current Opinion in HIV and AIDS·Olamide Dosekun, Julie Fox
Oct 2, 2013·QJM : Monthly Journal of the Association of Physicians·Allan Kellehear
Dec 21, 2013·Occupational Therapy in Health Care·Brian D Carpenter
Mar 20, 2014·BMJ Supportive & Palliative Care·Sally Paul, Libby Sallnow
Sep 1, 2011·BMJ Supportive & Palliative Care·Julian AbelGlennys Howarth
Jun 21, 2014·BMJ Supportive & Palliative Care·Julian AbelDeborah Morris

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Citations

Jun 2, 2020·Journal of Applied Research in Intellectual Disabilities : JARID·Stuart ToddKatherine Hunt

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