PMID: 11331535May 2, 2001Paper

The health care information directive

BMC Medical Informatics and Decision Making
R E Upshur, V Goel

Abstract

Developments in information technology promise to revolutionise the delivery of health care by providing access to data in a timely and efficient way. Information technology also raises several important concerns about the confidentiality and privacy of health data. New and existing legislation in Europe and North America may make access to patient level data difficult with consequent impact on research and health surveillance. Although research is being conducted on technical solutions to protect the privacy of personal health information, there is very little research on ways to improve individuals power over their health information. This paper proposes a health care information directive, analogous to an advance directive, to facilitate choices regarding health information disclosure. A health care information directive is described which creates a decision matrix that combines the ethical appropriateness of the use of personal health information with the sensitivity of the data. It creates a range of possibilities with in which individuals can choose to contribute health information with or without consent, or not to contribute information at all. The health care information directive may increase individuals understanding...Continue Reading

References

Mar 21, 1992·BMJ : British Medical Journal·E G Knox
Aug 27, 1994·Lancet·P A Singer
Feb 12, 1998·The New England Journal of Medicine·L J Melton
Dec 5, 1998·Annals of Internal Medicine·L O Gostin, J Hadley
Apr 30, 1999·Mayo Clinic Proceedings·S J JacobsenL J Melton
Sep 17, 1999·BMJ : British Medical Journal·A M O'ConnorJ Jones
Oct 27, 1999·JAMA : the Journal of the American Medical Association·J G HodgeP D Jacobson
Oct 29, 2000·BMJ : British Medical Journal·R Al-Shahi, C Warlow
Nov 10, 2000·BMJ : British Medical Journal·R Schoenberg, C Safran
Jan 13, 2001·International Journal of Medical Informatics·E H Kluge
Dec 12, 2001·Health Policy and Planning·B M YangE Y Bae

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Citations

Sep 16, 2011·Current Gerontology and Geriatrics Research·Lay GanGeoffrey C Farrell
Jan 7, 2003·BMC Medical Ethics·Timothy CaulfieldAbdallah Daar

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