The impact of active research involvement of young children in the design of a new stereotest

Research Involvement and Engagement
T. CasanovaKathleen Vancleef

Abstract

Although considered important, the direct involvement of young children in research design is scarce and to our knowledge its impact has never been measured. We aim to demonstrate impact of young children's involvement in improving the understanding of a new 3D eye test or stereotest. After a pre-measure of understanding was taken, we explored issues with the test instructions in patient and public involvement (PPI) sessions where children acted as advisers in the test design. Feedback was collected via observations, rating scales and verbal comments. An interdisciplinary panel reviewed the feedback, discussed potential changes to the test design, and decided on the implementation. Subsequently, a post-measure of understanding (Study 1-2) and engagement (Study 3) was collected in a pre-post study design. Six hundred fifty children (2-11.8 years old) took part in the pre-measure, 111 children (1-12 years old) in the subsequent PPI sessions, and 52 children (4-6 years old) in the first post-measure. One hundred twenty-two children (1-12 years old) and unrelated adults took then part in a second series of PPI sessions, and 53 people (2-39 years old) in the final post-measure. Adults were involved to obtain verbal descriptions of t...Continue Reading

References

Dec 27, 2005·American Journal of Ophthalmology·Son C HuynhPaul Mitchell
Jan 11, 2013·Archives of Disease in Childhood. Education and Practice Edition·Deborah BirdMonica Lakhanpaul
Jul 9, 2014·Nursing Children and Young People·Sue Collier
Aug 19, 2015·Canadian Journal of Occupational Therapy. Revue Canadienne D'ergothérapie·Sandy K TatlaLiisa Holsti
May 1, 2018·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Christina L HackettAshleigh Miatello
Jul 3, 2018·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·David RankinJulia Lawton
Jul 3, 2018·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Fenella J GillAndrea P Marshall
Mar 6, 2019·Translational Vision Science & Technology·Kathleen VancleefJenny C A Read

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