The impact of caregiver's role preference on decisional conflicts and psychiatric distresses in decision making to help caregiver's disclosure of terminal disease status

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
Shin Hye YooYoung Seon Hong

Abstract

The objective of this study was to investigate the impact of caregivers' role preference in decision making on conflicts and psychiatric distresses. The responses of 406 caregivers of terminal cancer patients enrolled in a trial determining the efficacy of a decision aid focused on the disclosure of terminal disease status were included in this secondary analysis. The outcomes include the change scores of the Decision Conflict Scale (DCS) and depression and anxiety subscales of the Hospital Anxiety and Depression Scale (HADS) at the 1 and 3 months from baseline. The linear mixed model was employed to discover the impact of caregivers' decisional role preference on the outcomes. Of the 406, 137 (33.7%) showed an active role preference and 269 (66.3%) showed a passive role preference. In the post hoc analysis of the adjusted differences of change scores between passive caregivers who received decision aid (passive-decision aid) and active caregivers with decision aid (active-decision aid), non-significant differences were observed in the DCS. However, at the 3-month, the change scores of the HADS depression subscale increased by 4.43 (effect size, 0.71) and those of the HADS anxiety subscale increased by 4.14 (effect size, 0.61) ...Continue Reading

References

Aug 1, 1988·The Journal of Hospital Infection·J Cohen
Jun 1, 1983·Acta Psychiatrica Scandinavica·A S Zigmond, R P Snaith
Jan 1, 1995·Medical Decision Making : an International Journal of the Society for Medical Decision Making·A M O'Connor
Nov 14, 1997·Annals of Oncology : Official Journal of the European Society for Medical Oncology·P N ButowM J Boyer
Mar 17, 2001·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·S MolenaarH C de Haes
Feb 8, 2002·Journal of Psychosomatic Research·Ingvar BjellandDag Neckelmann
Aug 9, 2003·Lancet·Agnes van der HeideUNKNOWN EURELD consortium
Sep 27, 2003·BMJ : British Medical Journal·Annette M O'ConnorDawn Stacey
Jul 29, 2004·JAMA : the Journal of the American Medical Association·Timothy WhelanSacha Dubois
Jun 23, 2005·Patient Education and Counseling·Mi-Kyung Song, Susan M Sereika
Aug 16, 2006·BMJ : British Medical Journal·Glyn ElwynUNKNOWN International Patient Decision Aids Standards (IPDAS) Collaboration
May 30, 2007·Archives of Internal Medicine·Audrey J WeymillerSteven A Smith
Dec 2, 2009·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Areej El-JawahriAngelo E Volandes
Apr 2, 2010·The New England Journal of Medicine·Maria J SilveiraKenneth M Langa
Nov 23, 2011·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Young Ho YunYoung Seon Hong
May 31, 2012·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·June Koo LeeDae Seog Heo
Jul 10, 2013·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Wendy W T LamRichard Fielding
Jul 25, 2013·BMJ : British Medical Journal·UNKNOWN Drug and Therapeutics Bulletin
Jul 29, 2015·Patient Education and Counseling·A M StiggelboutJ C J M De Haes
Sep 4, 2016·Rheumatology International·Sebastian BrueraMaria A Lopez-Olivo

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Citations

May 15, 2021·Scientific Reports·Guillaume FondLaurent Boyer

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