The impact of cleft lip and/or palate on parental quality of life: A pilot study

International Journal of Pediatric Otorhinolaryngology
Elise De CuyperHelen Van Hoecke

Abstract

Cleft lip and/or palate (CL/CP/CLP) is one of the most common congenital anomalies. Children may suffer from a variety of health problems including difficulties with feeding and speech, middle ear problems, hearing loss and associated psychosocial concerns. The extent of impact of this disorder on the parents, however, has not yet been thoroughly evaluated. This pilot study was performed to evaluate the impact of having a child with CL/CP/CLP on the parents' quality of life (QoL) and family functioning and to compare between cleft subgroups. Forty-five parents with children aged 6 months to 6 years with CL/CP/CLP, followed by the multidisciplinary orofacial cleft team of Ghent University Hospital, completed following standardized questionnaires: Impact on Family Scale (IOFS), Family Impact Scale (FIS) and Care-Related Quality of Life Instrument (CarerQoL). Subgroups were compared with diverse unpaired statistical tests. Younger children (6m-2y) with CL/CP/CLP entail more impact on parental QoL compared to children aged 2-4y old (p=0.04, ε²=0.15/p=0.02, ε²=0.17/p=0.02, ε²=0.17). Families from children with a syndromic cleft also encounter more impact (p=0.04, r=0.32 /p=0.01, r=0.37 /p=0.008, r=0.40/p=0.003, r=0.45). Prenatal oro...Continue Reading

Citations

Oct 27, 2020·Congenital Anomalies·Sevil ÇınarEda Gürlen
Jun 29, 2021·Frontiers in Cell and Developmental Biology·Hiroki YoshiokaJunichi Iwata
Aug 17, 2021·Plastic and Reconstructive Surgery·Amy S XueLarry H Hollier
Sep 6, 2021·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Marisa Garcia RodriguesMaria Emília Areias
Aug 7, 2021·International Journal of Paediatric Dentistry·Kazuteru NiinomiMiho Ike
Nov 18, 2021·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Raquel S SilvaRafaela da Silveira Pinto
Nov 30, 2021·The Cleft Palate-craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association·Bruna CostaNicola Marie Stock

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