The impact of parental young onset dementia on children and young people's educational careers

British Educational Research Journal
Pat Sikes, Melanie Hall

Abstract

It is well established that having a parent with any illness or disability can have an adverse effect on individuals' experiences of education and on their educational progress. Advances in medical knowledge are leading to more people under 65 being diagnosed with young onset dementias and, concomitantly, to more children and young people who are in education having a parent with this diagnosis. Hardly any research has asked these young people directly about their experiences, but the limited evidence suggests that there will likely be significant emotional, mental and psychological damage with enduring impact on their lives. This article, drawing on findings from a unique narrative, auto/biographical study involving 24 British 6 to 31-year-olds, focuses on the consequences of parental young onset dementia for educational careers. These dementias are untimely progressive terminal illnesses with unpredictable trajectories and timelines, throughout the course of which physical, cognitive and emotional functions and abilities are inexorably lost. Participants' experiences show that living with a parent with young onset dementia, whilst negotiating the education system, can be extremely hard. Difficulties are exacerbated by the con...Continue Reading

References

Jan 13, 2010·Qualitative Health Research·Perla WernerEli Buchbinder
Aug 26, 2010·International Psychogeriatrics·Emma SvanbergJoshua Stott
Nov 16, 2013·International Psychogeriatrics·Joany K MillenaarMarjolein E de Vugt
Jan 16, 2014·International Psychogeriatrics·Maria Lage BarcaAud Johannessen
Apr 8, 2014·Journal of Advanced Nursing·Allison Lindauer, Theresa A Harvath
May 21, 2014·Journal of Psychiatric and Mental Health Nursing·P Roach, N Drummond
Apr 8, 2017·Dementia·Tom ShakespearePeter Mittler

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Citations

Aug 23, 2019·Journal of Psychosocial Nursing and Mental Health Services·Caroline KiltyÁine de Róiste
Sep 12, 2020·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·Annalisa ChiariMarco Vinceti
May 14, 2019·Aging & Mental Health·Nicolas FarinaSahdia Parveen
Nov 30, 2019·British Journal of Nursing : BJN·Caroline KiltyAine de Roiste
Dec 29, 2018·Journal of Psychosocial Oncology·Jennifer L YoungAllison Werner-Lin
Nov 4, 2020·International Journal of Environmental Research and Public Health·Giorgia AdaniAnnalisa Chiari
Dec 3, 2020·Nutrients·Tommaso FilippiniMarco Vinceti
Apr 8, 2021·International Journal of Geriatric Psychiatry·Ilaria ChiricoRabih Chattat
May 18, 2021·Internet Interventions : the Application of Information Technology in Mental and Behavioural Health·Jeroen BruinsmaMarjolein de Vugt

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