The impact of pediatric nephrotic syndrome on parents' health-related quality of life and family functioning: an assessment made by the PedsQL 4.0 family impact module

Saudi Journal of Kidney Diseases and Transplantation : an Official Publication of the Saudi Center for Organ Transplantation, Saudi Arabia
Kirtisudha MishraBimbadhar Rath

Abstract

The multi-dimensional impact on the quality of life (QOL) of families of children with the nephrotic syndrome (NS) has not been studied sufficiently in the literature. We aimed to study this aspect and the predictors of poor QOL among Indian families having children with NS. A cross-sectional study was conducted to compare the parents of children with chronic NS on treatment for at least one year with parents of a matched healthy control group. The parents of both groups were asked to complete the standard self-administered multi-dimensional questionnaire of Pediatric Quality of Life Inventory 4 (PedsQL TM ) Family Impact Module (FIM). Descriptive and analytical statistics were performed to compare scores between the two groups. Possible predictors of poor outcome in each of the summary scales among the cases were assessed by both univariate and multivariate analysis. The parents of 61 cases and 72 controls completed the PedsQL TM FIM questionnaire. The scores in each of the categories, namely FIM Total Scale Score, Parent HRQOL Summary Score, Family Functioning Summary Score and eight individual domains, were found to be significantly higher among controls. Female gender of the affected child was an independent risk factor for...Continue Reading

Citations

Sep 30, 2016·Pediatric Nephrology : Journal of the International Pediatric Nephrology Association·Karnika RajaDaljit Hothi
Jan 7, 2017·Journal of Paediatrics and Child Health·Gurdeep S DhooriaMohit Kumar
Sep 3, 2017·Pediatric Nephrology : Journal of the International Pediatric Nephrology Association·Franca IoremberOluwatoyin Bamgbola
Feb 6, 2020·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Riham EidNashwa Hamdy
Jul 4, 2020·Neuropsychiatric Disease and Treatment·Azwin Mengindra PuteraMohammad Sjaifullah Noer
Jan 18, 2020·Canadian Journal of Kidney Health and Disease·Christopher I EsezoborAndrew T Olagunju
Jul 17, 2020·Pediatric Nephrology : Journal of the International Pediatric Nephrology Association·Shawn KhullarRulan S Parekh
Oct 8, 2020·The Journal of the Egyptian Public Health Association·Manal M DarwishTaghreed Abdul-Aziz Mohammad Ismail
Aug 6, 2021·International Journal of Pediatric Otorhinolaryngology·Aswin ChandranSuresh C Sharma

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