The importance of personalismo: Navigating obstacles in recruitment strategies for Spanish speakers in marginalized communities

Journal of Genetic Counseling
Emily G KelleyPhilip D Connors

Abstract

Recruitment obstacles with Spanish-speaking individuals and members of marginalized communities have been documented in the literature in narrative form, but quantitative data on effective strategies are limited. Within our research protocol assessing the impact of a storytelling intervention on knowledge and uptake of cell-free DNA (cfDNA) aneuploidy screening, three different recruitment strategies were trialed and enrollment rates were compared. Throughout the study, field notes were collected from observations in recruitment efforts. We demonstrate the effectiveness of language-concordant, personal interactions, and culturally tailored materials for recruitment of Spanish-speaking participants into genomic research studies. We also offer commentary on the experience of the researchers that provides insights to inform recruitment methods for marginalized communities.

References

Sep 6, 2003·Western Journal of Nursing Research·Sherry Garrett Hendrickson
Dec 2, 2005·PLoS Medicine·David WendlerEzekiel Emanuel
Apr 18, 2006·Family Process·Melanie Domenech RodríguezMelissa Davis
Mar 6, 2007·Western Journal of Nursing Research·Sherry Garrett Hendrickson
May 29, 2008·Archives of Women's Mental Health·Huynh-Nhu LeDeborah F Perry
Dec 17, 2008·Cancer Control : Journal of the Moffitt Cancer Center·Linda K LarkeyJulie Gonzalez
Apr 15, 2010·Journal of Health Communication·Linda K Larkey, Michael Hecht
Aug 6, 2011·Prevention Science : the Official Journal of the Society for Prevention Research·Charles R MartinezMelanie J Hyers
Dec 19, 2012·Research in Gerontological Nursing·Janice D CristJoseph T Hepworth
Jan 23, 2013·Journal of Immigrant and Minority Health·Sarah Ibrahim, Souraya Sidani
Mar 10, 2015·Journal of Empirical Research on Human Research Ethics : JERHRE·Rachel M CeballosBeti Thompson
Apr 8, 2015·Prenatal Diagnosis·Rachel FarrellJoanne Taylor
Apr 24, 2015·American Journal of Public Health·Sheila T MurphyLourdes A Baezconde-Garbanati
Jan 1, 2014·Journal of Clinical Medicine·Ruth M FarrellElliot Philipson
Apr 27, 2016·Journal of Transcultural Nursing : Official Journal of the Transcultural Nursing Society·Alexandra A GarcíaCzarina Lagon
Mar 16, 2017·Journal of Genetic Counseling·Galen JosephJanice Ka Yan Cheng
May 22, 2019·Journal of Genetic Counseling·Rachel AultGlenn A Martinez
Dec 5, 2019·International Journal of Environmental Research and Public Health·Alejandra Hurtado-de-MendozaVanessa B Sheppard

❮ Previous
Next ❯

Citations

May 6, 2021·Journal of Clinical and Translational Science·Elsa M Orellano-ColónJeffrey W Jutai

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.