The initial development of the 'Cancer Caregiving Tasks, Consequences and Needs Questionnaire' (CaTCoN)

Acta Oncologica
Line LundMogens Groenvold

Abstract

To develop a questionnaire for cancer patients' informal caregivers, measuring the caregiving tasks and consequences, and the caregivers' needs with a main focus on the interaction with the health care professionals. Such an instrument is needed to evaluate the efforts directed towards caregivers in the health care system. In order to identify themes relevant for the questionnaire, existing literature was reviewed and supplemented with focus group interviews with cancer patients' caregivers, cancer patients, clinicians, and cancer counselors. For each of the identified themes, one or more items were developed. During the development process, the items were evaluated by cognitive interviews in order to reduce problems with comprehension and response. The literature review and eight focus group interviews with a total of 39 participants resulted in a list of relevant themes concerning the caregiving tasks and consequences, and the caregivers' needs. Subsequently, items were developed, covering each relevant theme, and the questionnaire draft was evaluated by cognitive interviews with 24 caregivers. All in all, eight versions of the full questionnaire were evaluated, and furthermore, two items in the final version were evaluated i...Continue Reading

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Citations

Nov 30, 2014·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Line LundMogens Groenvold
Sep 23, 2016·Journal of Adolescent and Young Adult Oncology·Cecilie Dyg SperlingJanne Lehmann Knudsen
Jun 10, 2019·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Line LundMogens Groenvold
Feb 11, 2020·The Journal of Cardiovascular Nursing·Vivi Skibdal FrydensbergSusanne S Pedersen
Sep 20, 2019·Journal of Psychosocial Oncology·Jens-Jakob Kjer MøllerLinda Juel Ahrenfeldt
Dec 21, 2016·Journal of Oncology Practice·Leonard L BerryJoseph O Jacobson
Nov 27, 2018·European Journal of Cancer Care·Yuan HanShuzhong Cui
Jul 3, 2020·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Danielle Petricone-WestwoodSophie Lebel
Aug 14, 2020·BMC Psychology·Winson Fu Zun YangRathi Mahendran
Aug 13, 2021·Nursing Inquiry·Joonyup Lee, John G Cagle

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