The Internet as a source of data to support the development of a quality-of-life measure for eating disorders

Qualitative Health Research
Carol E AdairMarlene Reimer

Abstract

Despite the attractiveness of the Internet as a data source on individuals' experiences with health conditions, few have studied its use in quality-of-life instrument development. In this article, the authors describe the use of Internet-based unsolicited first-person narratives to supplement qualitative material derived from other sources (published articles and interviews) in the early stages of development of a quality-of-life instrument for eating disorders. In a systematic Internet search, they identified 31 posted first-person narratives. Sixteen (52%) authors had anorexia nervosa, 11 (35%) had bulimia nervosa, and 4 (13%) had either eating disorders not otherwise specified or both diagnoses. Themes arising from the narratives were very similar to those from other sources; however, some specific sensitive topics uniquely expressed in the narratives produced items that the authors later validated in focus groups. Despite some limitations, the Internet was an efficient, inexpensive, and fruitful source of supplementary information for item generation.

References

Jun 1, 1995·Western Journal of Nursing Research·M C Wilmoth
Dec 10, 1997·Journal of the American Medical Informatics Association : JAMIA·R M SoetiknoL A Lenert
Mar 23, 1999·British Journal of Psychology·T Buchanan, J L Smith
Jun 9, 1999·Canadian Journal of Gastroenterology = Journal Canadien De Gastroenterologie·R J HilsdenM J Verhoef
Apr 4, 2001·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·D A RevickiM Rothman
Sep 14, 2001·Qualitative Health Research·K M Robinson
Nov 10, 2001·BMJ : British Medical Journal·G Eysenbach, J E Till
Jan 30, 2003·Journal of Medical Internet Research·Gunther Eysenbach, Jeremy Wyatt
Dec 4, 2003·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·M S BaylissF Sheftell
Dec 17, 2003·ANS. Advances in Nursing Science·Antoinette H Cotton

❮ Previous
Next ❯

Citations

Apr 15, 2010·Eating Disorders·Rocio Guardiola-Wanden-BergheCarmina Wanden-Berghe
Feb 5, 2011·BMC Health Services Research·Syed Ghulam Sarwar Shah, Ian Robinson
Sep 13, 2006·Health Communication·William Evans
Jun 16, 2010·Expert Review of Pharmacoeconomics & Outcomes Research·Cicely KerrDiane Wild
Feb 1, 2008·Qualitative Health Research·Jeff GavinHelen Poyer
Dec 17, 2009·Qualitative Health Research·Clive SealeAnn McPherson
Feb 13, 2021·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Sara Colomer-LahigueraManuela Eicher

❮ Previous
Next ❯

Related Concepts

Related Feeds

Anorexia Nervosa

Anorexia nervosa (AN) is a psychiatric condition characterized by severe weight loss and secondary problems associated with malnutrition. Here is the latest research on AN.

Related Papers

The International Journal of Eating Disorders
Simone de la RieEric van Furth
Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
J M MondP J V Beumont
Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
Simone de la RieEric van Furth
© 2021 Meta ULC. All rights reserved