The Lililwan Project: study protocol for a population-based active case ascertainment study of the prevalence of fetal alcohol spectrum disorders (FASD) in remote Australian Aboriginal communities.

BMJ Open
James P FitzpatrickMarmingee Hand

Abstract

Anecdotal reports suggest that high-risk drinking in pregnancy is common in some remote Australian communities. Alcohol is teratogenic and may cause a range of lifelong conditions termed 'fetal alcohol spectrum disorders' (FASD). Australia has few diagnostic services for FASD, and prevalence of these neurodevelopmental disorders remains unknown. In 2009, Aboriginal leaders in the remote Fitzroy Valley in North Western Australia identified FASD as a community priority and initiated the Lililwani Project in partnership with leading research organisations. This project will establish the prevalence of FASD and other health and developmental problems in school-aged children residing in the Fitzroy Valley, providing data to inform FASD prevention and management. This is a population-based active case ascertainment study of all children born in 2002 and 2003 and residing in the Fitzroy Valley. Participants will be identified from the Fitzroy Valley Population Project and Communicare databases. Parents/carers will be interviewed using a standardised diagnostic questionnaire modified for local language and cultural requirements to determine the demographics, antenatal exposures, birth outcomes, education and psychosocial status of each...Continue Reading

References

Nov 3, 1973·Lancet·K L Jones, D W Smith
Oct 7, 2000·Alcohol and Alcoholism : International Journal of the Medical Council on Alcoholism·S J AstleyS K Clarren
Oct 7, 2000·Alcohol and Alcoholism : International Journal of the Medical Council on Alcoholism·S J AstleyS K Clarren
Dec 15, 2000·Journal of Paediatrics and Child Health·C BowerE Rudy
Sep 13, 2003·Journal of Paediatrics and Child Health·K R Harris, I K Bucens
Nov 20, 2003·Neurotoxicology and Teratology·Betty A PoitraLarry Burd
Jan 14, 2004·Journal of Paediatrics and Child Health·E J Elliott, C Bower
Aug 17, 2004·Journal of Developmental and Behavioral Pediatrics : JDBP·Ann P StreissguthJulia Kogan Young
Mar 2, 2005·CMAJ : Canadian Medical Association Journal = Journal De L'Association Medicale Canadienne·Albert E ChudleyUNKNOWN Public Health Agency of Canada's National Advisory Committee on Fetal Alcohol Spectrum Disorder
Dec 22, 2005·Australian and New Zealand Journal of Public Health·Jan PayneCarolyn Bower
Feb 28, 2006·Alcoholism, Clinical and Experimental Research·Astrid AlvikRolf Lindemann
Jan 26, 2007·Alcoholism, Clinical and Experimental Research·Lyn ColvinCarol Bower
Mar 6, 2007·Australian and New Zealand Journal of Public Health·Kelly AllenJane Halliday
Apr 7, 2007·BMJ : British Medical Journal·Martin Bloem
Aug 21, 2007·Archives of Disease in Childhood·E J ElliottC Bower
Mar 14, 2008·Alcoholism, Clinical and Experimental Research·Philip A MayDenis L Viljoen
Apr 1, 2008·Alcoholism, Clinical and Experimental Research·Ingrid de ChazeronDidier Lemery
Apr 17, 2008·BMC Pediatrics·Elizabeth PeadonElizabeth J Elliott
Mar 26, 2009·Journal of Paediatrics and Child Health·Raewyn MutchCarol Bower
Jul 4, 2009·Alcoholism, Clinical and Experimental Research·Susan J AstleyTodd Richards
Sep 5, 2009·Developmental Disabilities Research Reviews·Heather Carmichael OlsonSharon Beck
Jun 24, 2010·Alcoholism, Clinical and Experimental Research·Sarah N MattsonUNKNOWN Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD)
Apr 26, 2011·Alcohol and Alcoholism : International Journal of the Medical Council on Alcoholism·Svetlana PopovaJürgen Rehm

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Citations

Mar 16, 2012·Journal of Paediatrics and Child Health·Elizabeth ElliottMaureen Carter
Feb 19, 2016·Developmental Medicine and Child Neurology·Jacquelyn Bertrand
Mar 19, 2016·Developmental Medicine and Child Neurology·Barbara R LucasElizabeth J Elliott
Jun 10, 2014·Journal of Paediatrics and Child Health·Phillip S Kavanagh, Jennifer S Payne
Feb 20, 2015·Drug and Alcohol Review·James P FitzpatrickElizabeth J Elliott
Mar 21, 2015·Radiation Protection Dosimetry·M M Rehani
Jun 11, 2016·Research in Developmental Disabilities·John Gilroy, Eric Emerson
Jul 22, 2016·Journal of Paediatrics and Child Health·Barbara R LucasElizabeth J Elliott
Oct 25, 2016·BMC Medical Ethics·Emily F M FitzpatrickElizabeth J Elliott
Jul 28, 2017·Australian and New Zealand Journal of Public Health·James P FitzpatrickJohn Boulton
Jun 13, 2017·Journal of Developmental and Behavioral Pediatrics : JDBP·Tracey W TsangElizabeth J Elliott
Jan 17, 2015·Journal of Paediatrics and Child Health·James P FitzpatrickElizabeth J Elliott
Apr 11, 2018·BMJ Paediatrics Open·Tracey W TsangElizabeth J Elliott
Jan 31, 2019·BMC Medical Ethics·Emily Fm FitzpatrickElizabeth J Elliott
May 15, 2015·The Medical Journal of Australia·Carole ReeveDavid Reeve

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