The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica

International Journal of Qualitative Studies on Health and Well-being
Andrea Brown ForresterJascinth L M Lindo

Abstract

To explore the lived experiences of adolescents with sickle cell disease, in Kingston, Jamaica. A descriptive qualitative design was used for this research. In-depth interviews were conducted with six adolescents with sickle cell disease at a Sickle Cell Unit operated by the University of the West Indies. Interviews were audiotaped, transcribed, and thematically analyzed. The majority of the adolescents demonstrated a positive self-concept. They reported strong family, school, and peer support which made them feel accepted. All were actively engaged in social activities such as parties, but had challenges participating in sporting activities. Various coping strategies were utilized to address challenges of the disease including praying, watching television, and surfing the Internet. Sickle cell disease can be very challenging for the adolescent, but with positive self-concept and increased social support, especially from family and peers, these adolescents were able to effectively cope with their condition and live productive lives.

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Citations

Apr 19, 2018·Journal of Religion and Health·Masoume RambodKate Khair
May 20, 2020·Nursing & Health Sciences·Andrews A DruyeBrian Robinson
Nov 20, 2020·Journal of Pediatric Psychology·Abigail JonesAbbie Jordan

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