The PanCareSurFup cohort of 83,333 five-year survivors of childhood cancer: a cohort from 12 European countries

European Journal of Epidemiology
Desiree GrabowPanCareSurFup consortium

Abstract

Childhood cancer survivors face risks from a variety of late effects, including cardiac events, second cancers, and late mortality. The aim of the pan-European PanCare Childhood and Adolescent Cancer Survivor Care and Follow-Up Studies (PanCareSurFup) Consortium was to collect data on incidence and risk factors for these late effects among childhood cancer survivors in Europe. This paper describes the methodology of the data collection for the overall PanCareSurFup cohort and the outcome-related cohorts. In PanCareSurFup 13 data providers from 12 countries delivered data to the data centre in Mainz. Data providers used a single variable list that covered all three outcomes. After validity and plausibility checks data was provided to the outcome-specific working groups. In total, we collected data on 115,596 patients diagnosed with cancer from 1940 to 2011, of whom 83,333 had survived 5 years or more. Due to the eligibility criteria and other requirements different numbers of survivors were eligible for the analysis of each of the outcomes. Thus, 1014 patients with at least one cardiac event were identified from a cohort of 39,152 5-year survivors; for second cancers 3995 survivors developed at least one second cancer from a coh...Continue Reading

Associated Clinical Trials

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Citations

Oct 11, 2019·Current Opinion in Pediatrics·Celiane Rey-CasserlyUNKNOWN Boston Childrenʼs Hospital
Sep 21, 2019·International Journal of Radiation Biology·Petra SeiboldMaria Blettner
Aug 19, 2020·European Journal of Heart Failure·José Luis ZamoranoGiorgio Minotti
Nov 7, 2019·Current Opinion in Pediatrics·Celiane Rey-Casserly, Tanya Diver
Sep 8, 2018·European Journal of Epidemiology·Thomas WiebeStanislaw Garwicz
Aug 23, 2020·Heart·Elizabeth Arnoldina Maria FeijenUNKNOWN PanCareSurFup consortium
May 6, 2020·European Journal of Epidemiology·M Arfan IkramTrudy Voortman
Jul 3, 2020·Scientific Reports·Zsuzsanna JakabGabor Kovacs
Sep 28, 2018·BMC Cancer·Anne-Lotte L F van der KooiUNKNOWN PanCareLIFE Consortium
Feb 8, 2020·JCO Global Oncology·Eleni SyrimiPamela Kearns
Nov 3, 2020·Pediatric Clinics of North America·Michael HawkinsLindsay M Morton
Jul 2, 2019·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Rodrigue S AllodjiRaoul C Reulen
Apr 24, 2021·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Claudia PasqualiniBirgit Geoerger
May 1, 2021·International Journal of Environmental Research and Public Health·Peter KaatschUNKNOWN PanCareLIFE Consortium

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Software Mentioned

ALiCCS
SAS
SurFup
PanCare
Visual Basics for Applications
PanCareSurFup
Windows
VBA

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