The 'persons' and 'genomics' of personal genomics

Personalized Medicine
Jenny Reardon

Abstract

At stake in the debate about personal genomics is what kind of person can be trusted to interpret genomes. Deciding this hinges not just on determining if consumers can interpret genomic information, but on deciding which biological and medical experts (if any) can perform these interpretive acts. Understanding why personal genomics has generated such tension and attention requires bringing these struggles, over who can interpret 'the code of life', into focus. While debates about personal genomics focus largely on relatively narrow issues of fraud and deception, this emerging new scientific and political terrain poses more fundamental questions about how the study of biological life, as well as the organization of democratic life, should proceed in genomic times.

References

May 2, 2003·Nature Genetics·Anne Cambon-Thomsen
May 22, 2004·Nature Reviews. Genetics·UNKNOWN International HapMap Consortium
Apr 29, 2008·Nature·Bijal Trivedi
Oct 9, 2009·Nature·Pauline C NgJ Craig Venter
Sep 17, 2010·The New England Journal of Medicine·James P EvansCathy Fomous
Jun 15, 2011·Isis; an International Review Devoted to the History of Science and Its Cultural Influences·Bruno J Strasser

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Citations

Jul 2, 2020·JAMIA Open·Carolyn PetersenRupa S Valdez
Jun 23, 2012·Journal of Sex Research·Kate O'Riordan
Sep 1, 2014·Personalized Medicine·Barbara Prainsack
Mar 22, 2013·Journal of Bioethical Inquiry·Jacqueline Savard

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Methods Mentioned

BETA
chips
genotyping

Software Mentioned

Basic Local Alignment Search Tool
PG
Navigenics
TIME
DeCodeMe
23andMe
BLAST

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