The perspectives of children and young people affected by parental life-limiting illness: An integrative review and thematic synthesis.

Palliative Medicine
Steve MarshallRichard Harding

Abstract

Although the death of a parent during childhood is relatively commonplace, the voices of children affected by parental life-limiting illness are under-represented in research evidence. Guidance for healthcare professionals is largely based upon professional opinion rather than the experience of children themselves. To synthesise and appraise the literature from primary research with children about their experience of having a parent with a life-limiting illness. Integrative review and thematic synthesis. Registered on PROSPERO (CRD42019094581). PsychINFO, Medline, Embase, Scopus and Web of Science were searched, supplemented by searches of grey literature and systematic reviews. There were no restrictions on publication date, and study quality was appraised using the Hawker checklist. Studies reporting the findings of primary research with participants under 18, whose parent has a life-limiting illness, were eligible for inclusion. Twenty-one papers met the inclusion criteria (n = 13 qualitative; n = 8 quantitative), reporting on n = 18 studies from high-income countries. Findings reveal that throughout parental life-limiting illness, children strive for agency, but are often shielded and excluded by adults. The experience of l...Continue Reading

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Citations

Sep 21, 2021·The American Journal of Hospice & Palliative Care·Jeffrey R HannaLouise J Dalton

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