The process of adjustment over time following stroke: A longitudinal qualitative study

Neuropsychological Rehabilitation
Alice TheadomARCOS IV Group

Abstract

Understanding how people adjust following stroke is essential to optimise recovery and ensure services are responsive to people's needs. This study aimed to explore people's experiences over the first three years post-stroke and identify what helped or hindered recovery. As part of a longitudinal, qualitative descriptive study, 55 people and 27 significant others purposefully selected from a population-based stroke incidence study were interviewed 6, 12, 24 and 36 months post-stroke. Interviews were audio taped and transcribed verbatim. Participants described an ongoing process of shock, disruption, and fear, making sense of what happened, needing to fit in with what's offered, finding what works for them and evolving a new normal, whilst managing the ups and downs of life. This process needed to be re-negotiated over time, as people experienced changes in their recovery, comorbidities and/or wider circumstances. The adjustment process continued over the three years post-stroke, even for those who perceived that they were recovering well. Rehabilitation services need to support patients to make sense of their stroke, navigate the health system, address individual concerns and priorities and to know what, when and how much to ch...Continue Reading

References

Aug 15, 2000·Research in Nursing & Health·M Sandelowski
Nov 21, 2008·Journal of Rehabilitation Medicine·Katherine SalterRobert Teasell
Sep 16, 2011·Neuropsychological Rehabilitation·Gavin H TaylorNiall M Broomfield
Jan 4, 2013·The British Journal of Psychiatry : the Journal of Mental Science·Luis AyerbeAnthony G Rudd
Jan 23, 2013·Archives of Physical Medicine and Rehabilitation·Ton SatinkMaria W Nijhuis-van der Sanden
Jul 26, 2013·Disability and Rehabilitation·Sophie SarreChristopher McKevitt
Oct 30, 2013·International Journal of Stroke : Official Journal of the International Stroke Society·Rita KrishnamurthiUNKNOWN ARCOS IV Programme Group
Nov 2, 2013·International Journal of Stroke : Official Journal of the International Stroke Society·Sandy J RutherfordKathryn M McPherson
Jan 23, 2014·Lancet·Valery L FeiginUNKNOWN Global Burden of Diseases, Injuries, and Risk Factors Study 2010 (GBD 2010) and the GBD Stroke Experts Group
Apr 8, 2015·Archives of Physical Medicine and Rehabilitation·Julie LukerJulie Bernhardt
Nov 3, 2016·Neuropsychological Rehabilitation·Christian E SalasDesmond A J Flanagan
Jul 27, 2017·Health and Quality of Life Outcomes·Josefine PerssonGunilla Forsberg-Wärleby

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Citations

Apr 8, 2021·International Journal of Language & Communication Disorders·Becky MossKaterina Hilari
Aug 8, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Beilei LinDaphne Cheung

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Software Mentioned

NVivo qualitative
NVivo

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