The relationship of nondirectiveness to genetic counseling: report of a workshop at the 2003 NSGC Annual Education Conference

Journal of Genetic Counseling
Jon WeilBonnie S Leroy

Abstract

Nondirectiveness has been a guiding principle for genetic counseling since the founding of the profession. However, its efficacy and appropriateness in this role have been frequently questioned. A workshop at the 2003 Annual Education Conference of the National Society of Genetic Counselors provided audience participation in a discussion of these issues. Participants presented arguments for and against nondirectiveness as a central ethos. They described complex personal transitions in adapting what they had learned about nondirectiveness during training to the realities of the workplace. There was support for flexible approaches to genetic counseling, with varying adherence to nondirectiveness, based on client and family needs and values, clinical circumstances, and desired counseling outcomes. The discussion supports the use of clinical experience, outcomes research, and the experience of other professions to move beyond nondirectiveness and more accurately identify the theoretical bases that underlie genetic counseling in the variety of circumstances in which it is currently practiced.

References

Jan 1, 1994·Women & Health·B M Burke, A Kolker
Jan 10, 1996·JAMA : the Journal of the American Medical Association·C Laine, F Davidoff
Oct 23, 1997·American Journal of Medical Genetics·S Kessler
Oct 23, 1997·American Journal of Medical Genetics·D M BartelsA L Caplan
Feb 9, 2000·Journal of Medical Genetics·G ElwynA Clarke
Mar 1, 1992·Journal of Genetic Counseling·UNKNOWN National Society of Genetic Counselors
Mar 1, 1992·Journal of Genetic Counseling·Seymour Kessler
Oct 20, 2001·Journal of Genetic Counseling·Mary Terrell White
Mar 1, 1995·Journal of Genetic Counseling·Gerhard Wolff, Christine Jung
Oct 20, 2001·Journal of Genetic Counseling·Seymour Kessler
Jan 10, 2002·American Journal of Medical Genetics·B B Biesecker, K F Peters
Jun 29, 2002·Patient Education and Counseling·Ann CranneyGeorge A Wells
May 9, 2003·Journal of Genetic Counseling·Matthew A BowerBonnie S LeRoy
May 20, 2003·Acta Psychiatrica Scandinavica·J HamannW Kissling
Dec 20, 2003·Journal of Genetic Counseling·Jon Weil
Jul 29, 2004·JAMA : the Journal of the American Medical Association·Timothy WhelanSacha Dubois
Aug 18, 2004·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·M S van RoosmalenW A J van Daal
Dec 18, 2004·Journal of Genetic Counseling·Angela TrepanierUNKNOWN National Society of Genetic Counselors
Nov 11, 2005·Clinical Trials : Journal of the Society for Clinical Trials·Mark C SimmondsSimon G Thompson
Mar 1, 1994·Journal of Genetic Counseling·B M Burke, A Kolker
Sep 1, 1995·Journal of Genetic Counseling·F Brunger, A Lippman
Dec 1, 1999·Journal of Genetic Counseling·S Kessler
Jun 1, 2002·Journal of Genetic Counseling·Patricia McCarthy VeachBonnie S LeRoy
Mar 1, 1997·Journal of Genetic Counseling·D L Eunpu

❮ Previous
Next ❯

Citations

Oct 16, 2007·Journal of Genetic Counseling·Patricia McCarthy VeachBonnie S Leroy
Oct 7, 2008·Journal of Genetic Counseling·Amelia R WoltanskiDeborah L Cragun
Oct 6, 2009·Journal of Genetic Counseling·Ryan T CragunDeborah L Cragun
Nov 1, 2011·Journal of Genetic Counseling·Jan Hodgson, Jon Weil
Jun 4, 2013·Journal of Genetic Counseling·Brigitte Gschmeidler, Magdalena Flatscher-Thoeni
Jan 17, 2008·European Journal of Human Genetics : EJHG·Elina RantanenHelena Kääriäinen
Oct 15, 2014·Patient Education and Counseling·Jean PaulJan Hodgson
Feb 27, 2014·Journal of Genetic Counseling·Barbara A BernhardtRonald J Wapner
Dec 20, 2014·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Tina-Marié WesselsClaire Penn
Dec 15, 2015·Journal of Genetic Counseling·John M Quillin
Nov 18, 2008·American Journal of Medical Genetics. Part a·Barbara A Bernhardt
Dec 13, 2007·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Wylie BurkeMark Kroese
Jan 11, 2019·Journal of Genetic Counseling·Diane SalemaJehannine Austin
Oct 12, 2007·Journal of Autism and Developmental Disorders·Kristen L HessMichelle L Ivey
Jun 20, 2008·Journal of Genetic Counseling·Ilana Suez Mittman, Katy Downs
Jul 25, 2009·Death Studies·Kaori Wada, Jeeseon Park
Oct 23, 2009·World Journal of Surgery·Breena R TairaMohan DeSilva
Apr 14, 2010·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Barbara A BernhardtGail Geller
Nov 15, 2011·Journal of Digital Imaging·Thomas M DesernoAlexander Horsch
Oct 9, 2018·Genetics in Medicine : Official Journal of the American College of Medical Genetics·Mahsa ShabaniPascal Borry
Feb 6, 2014·Molecular Genetics & Genomic Medicine·Kelly E Ormond
Jun 28, 2018·Journal of Community Genetics·Kelly E Ormond, Joerg Schmidtke
Jun 20, 2020·Journal of Bioethical Inquiry·Will SchupmannBenjamin E Berkman
Mar 9, 2017·Journal of Genetic Counseling·Luba Djurdjinovic, June A Peters
Apr 9, 2021·Journal of Genetic Counseling·Shea BonineLindsay Erickson

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Journal of Genetic Counseling
National Society of Genetic Counselors' Definition Task ForceJanet L Williams
Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology
American Society of Clinical Oncology
© 2021 Meta ULC. All rights reserved