The Right Not to Know and the Duty to Tell: The Case of Relatives

The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics
Niklas Juth

Abstract

Obtaining and sharing genetic information when there is a potential conflict of interest between patients and their relatives give rise to two questions. Do we have a duty to find out our genetic predispositions for disease for the sake of our relatives, or do we have a right to remain ignorant? Do we have a duty to disclose our known genetic predispositions for disease to our relatives? I argue that the answer to both questions is yes, but to a lesser extent than sometimes claimed.

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Citations

Nov 7, 2015·Social Science & Medicine·Verina WildNikola Biller-Andorno
Aug 6, 2015·The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics·Erin B Bernstein
May 1, 2020·Journal of Medical Ethics·Lisa Dive, Ainsley Janelle Newson
May 6, 2020·Human Reproduction·Guido Pennings
May 1, 2020·Journal of Medical Ethics·Ben Davies

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