The stories we tell: qualitative research interviews, talking technologies and the 'normalisation' of life with HIV

Social Science & Medicine
Fadhila Mazanderani, Sara Paparini

Abstract

Since the earliest days of the HIV/AIDS epidemic, talking about the virus has been a key way affected communities have challenged the fear and discrimination directed against them and pressed for urgent medical and political attention. Today, HIV/AIDS is one of the most prolifically and intimately documented of all health conditions, with entrenched infrastructures, practices and technologies--what Vinh-Kim Nguyen has dubbed 'confessional technologies'--aimed at encouraging those affected to share their experiences. Among these technologies, we argue, is the semi-structured interview: the principal methodology used in qualitative social science research focused on patient experiences. Taking the performative nature of the research interview as a talking technology seriously has epistemological implications not merely for how we interpret interview data, but also for how we understand the role of research interviews in the enactment of 'life with HIV'. This paper focuses on one crucial aspect of this enactment: the contemporary 'normalisation' of HIV as 'just another' chronic condition--a process taking place at the level of individual subjectivities, social identities, clinical practices and global health policy, and of which s...Continue Reading

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Jan 28, 2017·PloS One·Anne GosselinUNKNOWN Parcours Study Group
Jan 12, 2017·Ciência & saúde coletiva·Wilza Vieira Villela, Regina Maria Barbosa
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Sep 15, 2021·African Journal of AIDS Research : AJAR·Maxwell Peprah OpokuAnthony Kweku Edusei

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