The study circle as a tool in multiple sclerosis patient education in Sweden.

Patient Preference and Adherence
Anne-Marie LandtblomGullvi Flensner

Abstract

Patient education plays an important role in the management of chronic diseases that can cause disability and predictable psychosocial problems. Quality of life assessment in multiple sclerosis (MS) has confirmed that psychosocial complications related to working life, marriage/partnership, and the family often occur. Furthermore, symptoms such as fatigue, pain, and sexual dysfunction have a great impact. We wanted to develop and implement study circles to promote the patients' abilities to meet such common problems and to provide a network where they can be autonomous and develop appropriate strategies in self-care and existential problems. Together with the MS patient organization and a study association, we have arranged study circles for patients with MS, thus providing structured information according to a pedagogic model. The patients are encouraged to work together in groups to learn about the disease and its key symptoms, to develop strategies to master these symptoms in everyday life, and to make necessary changes, ie, self-care management. The programme also contains handicap policies. Fifteen study circles with a total of 105 patients started during the first year. Fifteen circle leaders were approved. A focus interv...Continue Reading

References

Nov 10, 2000·General Hospital Psychiatry·N Mills, J Allen
Aug 25, 2004·Patient Education and Counseling·Sally E ThorneLiza McGuinness
Nov 19, 2004·Journal of Neurology·Peter Rieckmann
Aug 24, 2005·British Journal of Nursing : BJN·Rhona MacLean, Andrew Russell
Aug 24, 2005·British Journal of Nursing : BJN·Kerry Mutch
Dec 28, 2007·Patient Education and Counseling·Martine C PruntyGary Fulcher

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Citations

Jul 7, 2015·Revue de l'infirmière·Sandrine Lefebvre, Sandrine Diebold
Oct 25, 2011·Epilepsy & Behavior : E&B·Helena GauffinAnne-Marie Landtblom
Mar 11, 2011·Annals of Physical and Rehabilitation Medicine·S Demaille-WlodykaUNKNOWN ETP Sofmer Group
Oct 3, 2009·Food & Nutrition Research·Albert WestergrenKerstin Ulander

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