The Swedish Aging With Spinal Cord Injury Study (SASCIS): Methodology and Initial Results

PM & R : the Journal of Injury, Function, and Rehabilitation
Sophie JörgensenJ Lexell


Advances in acute treatment, physiatric care, and rehabilitation have improved survival greatly after spinal cord injury (SCI) and increased longevity. This has led to a need for an in-depth understanding of factors associated with healthy aging in people with long-term SCI. To present the methodology and initial results of the Swedish Aging with Spinal Cord Injury Study, a longitudinal cohort survey targeting older adults with long-term SCI. Cross-sectional cohort study. Home and community settings. People aged 50 years or older with SCI for at least 10 years. Data were collected through interviews and assessments during home visits and from the participants' medical records. Study-specific protocol with custom-designed questions, and validated generic and SCI-specific assessment tools focusing on functioning, disability, health, well-being, lifestyle, and personal and environmental factors. Of 795 potential participants, 184 matched the inclusion criteria and the final sample comprised 123 participants (67% response rate; 36 women and 87 men, mean age 63 ± 9 years, mean time since injury 24 ± 12 years). Traumatic SCI accounted for 62%, and 31% had sustained a complete SCI. A majority was married or had a partner, and used som...Continue Reading


Sep 21, 2016·PM & R : the Journal of Injury, Function, and Rehabilitation·Sophie JörgensenJ Lexell
Jul 3, 2018·PM & R : the Journal of Injury, Function, and Rehabilitation·Sophie JörgensenJ Lexell
May 18, 2019·The Journal of Spinal Cord Medicine·Sophie JörgensenJ Lexell
Jun 17, 2020·Scandinavian Journal of Occupational Therapy·Gunilla CarlssonEva Månsson Lexell
Dec 25, 2018·Current Gerontology and Geriatrics Research·Roberto PiliDonatella Rita Petretto


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