The use of human tissue in epidemiological research; ethical and legal considerations in two biobanks in Belgium.

Medicine, Health Care, and Philosophy
Carla TruyersFrank Buntinx

Abstract

This paper discusses the legal implications of setting up two new biobanks in Belgium. The first is hospital-based and will archive tissue from patients with haematologic cancer, whereas the second is linked to a general practice based morbidity registry and will involve storage of blood samples. To date, Belgium has no specific legislation that regulates storage of human tissue and related databases. Several issues concerning the protection of individuals with regard to the processing of personal medical data are discussed from the existing privacy legislation. We will address the principle of consent (broad versus specific) and the type of data recorded (anonymous, encoded and identifiable) for both biobanks.

References

Jul 3, 1998·Journal of Medical Ethics·M O Hansson
Nov 17, 2001·JAMA : the Journal of the American Medical Association·L M BeskowM J Khoury
Jun 19, 2004·Scandinavian Journal of Public Health·Klaus HoeyerNiels Lynöe
Nov 3, 2004·Nature Reviews. Genetics·Anne Cambon-Thomsen
Jun 21, 2005·Family Practice·Stefaan BartholomeeusenFrank Buntinx
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Mar 3, 2006·The Lancet Oncology·Mats G HanssonGert Helgesson
Mar 4, 2006·BMJ : British Medical Journal·David Wendler
Mar 30, 2006·BMC Family Practice·Ann Van den BruelFrank Buntinx

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Citations

Jul 28, 2012·Stem Cell Reviews and Reports·Kristina HugMats Johansson
Jul 28, 2020·Diagnostics·Kristina MalsagovaAnna Kaysheva
Sep 21, 2013·The Journal of Histochemistry and Cytochemistry : Official Journal of the Histochemistry Society·Sabnam ParbinSamir Kumar Patra

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