The views of ethics committee members and medical researchers on the return of individual research results and incidental findings, ownership issues and benefit sharing in biobanking research in a South Indian city

Developing World Bioethics
Manjulika VazSrinivasan K

Abstract

The return of individual research results and incidental findings from biobanking research is a much debated ethical issue globally but has extensive relevance in India where the burden of out of pocket health care expenses is high for the majority. The views of 21 ethics committee (EC) members and 22 researchers from Bengaluru, India, concerning the ethics of biobanking research were sought through in-depth interviews using an unfolding case vignette with probes. A shared view among most was that individual research results which are 'actionable' or have 'clinical significance' should be returned to the sample contributors through their treating physicians. This was seen as an ethical obligation and a moral duty on the side of the researcher to "give back" to the person who contributed to the research. The challenges foreseen were that of resources, both financial and personnel, for the time and counseling needed to accompany the disclosure of results. Perceptions of 'ownership' appear to influence the concept of benefit sharing. While benefit sharing in financial terms was considered ethically challenging, certain researchers and ethics committee members made a case for "two way altruism" where the researcher in return for th...Continue Reading

Citations

Sep 8, 2020·Cambridge Quarterly of Healthcare Ethics : CQ : the International Journal of Healthcare Ethics Committees·Charlotte H C BomhofEline M Bunnik
Jul 25, 2020·Biopreservation and Biobanking·Ghiath AlahmadAdel F Almutairi
Jul 24, 2021·Asian Bioethics Review·Latifah AminMaznah Ibrahim
Jul 29, 2021·BMC Medical Ethics·Allan SudoiDorcas Kamuya
Sep 22, 2021·International Journal of Circumpolar Health·Sardana KononovaSardana Fedorova

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