The VOICE Study: Valuing Opinions, Individual Communication and Experience: building the evidence base for undertaking Patient-Centred Family Meetings in palliative care - a mixed methods study

Pilot and Feasibility Studies
Philippa J CahillJane L Phillips

Abstract

Despite family meetings being widely used to facilitate discussion among patients, families, and clinicians in palliative care, there is limited evidence to support their use. This study aims to assess the acceptability and feasibility of Patient-Centred Family Meetings in specialist inpatient palliative care units for patients, families, and clinicians and determine the suitability and feasibility of validated outcome measures from the patient and family perspectives. The study is a mixed-methods quasi-experimental design with pre-planned Patient-Centred Family Meetings at the intervention site. The patient will set the meeting agenda a priori allowing an opportunity for their issues to be prioritised and addressed. At the control site, usual care will be maintained which may include a family meeting. Each site will recruit 20 dyads comprising a terminally ill inpatient and their nominated family member. Pre- and post-test administration of the Distress Thermometer, QUAL-EC, QUAL-E, and Patient Health Questionnaire-4 will assess patient and family distress and satisfaction with quality of life. Patient, family, and clinician interviews post-meeting will provide insights into the meeting feasibility and outcome measures. Recrui...Continue Reading

References

May 20, 2000·Annals of Internal Medicine·K E SteinhauserJ A Tulsky
Nov 14, 2000·JAMA : the Journal of the American Medical Association·K E SteinhauserJ A Tulsky
Apr 11, 2003·Journal of Palliative Medicine·Karen E SteinhauserJames A Tulsky
Jan 22, 2005·Journal of Palliative Medicine·Kathleen Moneymaker
Jan 13, 2006·Archives of Internal Medicine·Karen E SteinhauserJames A Tulsky
Apr 6, 2006·Medical Care Research and Review : MCRR·Meredith B Rosenthal, Richard G Frank
Oct 26, 2006·Health Affairs·John C Goodman
Aug 20, 2008·BMC Palliative Care·Peter HudsonSanchia Aranda
Aug 30, 2008·Journal of Affective Disorders·Kurt KroenkeAli H Mokdad
Nov 22, 2008·Journal of Palliative Medicine·Sriram YennurajalingamEduardo Bruera
Nov 26, 2008·Palliative Medicine·P HudsonS Aranda
Dec 2, 2008·Journal of Social Work in End-of-life & Palliative Care·Terry AltilioConstance M Dahlin
May 26, 2010·Australian Health Review : a Publication of the Australian Hospital Association·Kathy EagarPatsy Yates
Dec 4, 2010·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Christopher LoCamilla Zimmermann
Mar 10, 2011·Journal of Palliative Medicine·Iris Cohen FinebergSteven M Asch
Jan 9, 2013·Annals of Internal Medicine·An-Wen ChanDavid Moher
Sep 14, 2013·The American Journal of Hospice & Palliative Care·Ruth D Powazki, Declan Walsh
May 27, 2014·Journal of Pain and Symptom Management·Karen E SteinhauserJames A Tulsky
Aug 6, 2016·Palliative Medicine·Philippa J CahillJane L Phillips

❮ Previous
Next ❯

Software Mentioned

Statistical Package for the Social Sciences ( SPSS
EC
VOICE
QUAL
QSR NVivo

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.